Next Stop, College
Patients offer advice for graduating high school students about managing a health condition in a university environment.
Mindfulness in Action
It can be tough to adjust to life with a serious health problem or a rare disease. Dr. Sarah Gulick helps patients enjoy life…
Leaders Who Inspire
The Healthcare Businesswomen's Association names two employees as Luminary and Rising Star honorees.
Short, sweet and once a week
Subscribe to get three stories each week about rare disease patients and biotech innovations.
Be a Mama Bear and Other Advice for Moms
Patient advocates wish a Happy Mother’s Day to the rare disease community.
It’s a good year to learn to surf. Pro surfer Arran Strong – a rare disease advocate – explains how to get started.
Nurses Week 2021
We celebrate a profession so essential in health care, it’s often called “the glue” in a patient’s health care experience.
The Philadelphia Inquirer, one of the leading newspapers in the United States, takes a close look at Uplifting Athletes and t…