Rare disease patient playing guitar

Is Music Therapy a Prescription for Rare Diseases?

For some patients, rhythm and beats can complement hospitals and medication.

18 Mar 2019 Wellness
Rare disease patient Tim Grams, who is living with severe hemophilia A

WATCH: Have a Rare Disease? ‘Don’t Fear Failure’

See one patient’s tips for living an active life with a rare disease.

20 Mar 2019 Wellness
Rare disease patient James, who is living with hemophilia, during his swim from Alcatraz to San Francisco

Teens Making an Impact: Meet James

Swim from Alcatraz to San Francisco? He did it.

19 Mar 2019 Wellness
Uplifting Athletes Rare Disease Champion trophy in front of television screen with CSL Behring logo

Young Investigator Draft Awards $120,000+

CSL Behring-sponsored Uplifting Athletes event connects rare disease community.

15 Mar 2019 Communities
Chronic Inflammatory Demyelinating Polyneuropathy rare disease patient Elizabeth Thirtyacre

What One Patient Wants You to Know About CIDP

Watch Elizabeth's tips for living with the neurological disorder.

14 Mar 2019 Wellness

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