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Rare disease patient playing guitar

Is Music Therapy a Prescription for Rare Diseases?

For some patients, rhythm and beats can complement hospitals and medication.

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18 Mar 2019 Wellness
Rare disease patient Tim Grams, who is living with severe hemophilia A

WATCH: Have a Rare Disease? ‘Don’t Fear Failure’

See one patient’s tips for living an active life with a rare disease.

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20 Mar 2019 Wellness
Rare disease patient James, who is living with hemophilia, during his swim from Alcatraz to San Francisco

Teens Making an Impact: Meet James

Swim from Alcatraz to San Francisco? He did it.

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19 Mar 2019 Wellness
Uplifting Athletes Rare Disease Champion trophy in front of television screen with CSL Behring logo

Young Investigator Draft Awards $120,000+

CSL Behring-sponsored Uplifting Athletes event connects rare disease community.

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15 Mar 2019 Communities
Chronic Inflammatory Demyelinating Polyneuropathy rare disease patient Elizabeth Thirtyacre

What One Patient Wants You to Know About CIDP

Watch Elizabeth's tips for living with the neurological disorder.

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14 Mar 2019 Wellness
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