Telemedicine and Genetic Counseling
Thanks to online visits, patients can access genetic counseling despite a global pandemic.
COVID-19 Vaccines and PI Patients
A good news update for PI patients from Dr. Kate Sullivan: “I can be more optimistic than I have been before.”
Winter Days Don't Have to be SAD
Dark falls quickly in December. Learn how to look on the bright side.
Short, sweet and once a week
Subscribe to get three stories each week about rare disease patients and biotech innovations.
CZI Donates $1.3 Million to Rare Disease Groups
NORD and EURORDIS receive partnership grants to “lift up patient advocates” during an uncertain time.
Take a Virtual Lab Tour
Go behind the scenes in Marburg, Germany, to learn how scientists remove pathogens from medicines to make them safe for patie…
Designing Clinical Trials With Patients
CSL Behring’s Deirdre BeVard will join a panel discussion on the topic December 3, but she plans to do a lot of listening.
Supporting Top Talent in Germany
CSL Behring provides 14 scholarships to several schools, including a partner university of Penn State.