Meet Michael Joshua
Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.
To Turn Inward or Reach Out?
Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.
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Parents, Kids and Rare Disease
When a rare disease is part of family life, expect a few extra challenges.
Video: On Patience and Hard-to-Diagnose Illnesses
Lynne Doebber, who was ill for decades before her diagnosis, offers advice to those still searching for answers.
Audrey Hepburn - an Icon for Rare Disease Advocacy
EURORDIS-Rare Diseases Europe bestows posthumous honor on the actress and humanitarian; Hepburn’s son is an advocate for rare…
Get Some Animated Advice
Our hero patient takes on issues like being undiagnosed, how to talk to the doctor and getting support from friends.