John Vieke with his daughter Emma.

Video: A Father’s Bond

How John Vieke’s daughter helped him see his rare disease in a new light.

12 Jun 2019 Wellness
Animated woman as superhero

Symptoms of von Willebrand Disease

Women who have the bleeding disorder often go undiagnosed, Duke doctor says.

17 Jun 2019 Wellness
Alison Bartko with her son, A.J., who is living with congenital afibrogenemia

Video: How to Advocate for Access to Care

One mom’s tips on speaking up for children with a rare disease.

14 Jun 2019 Wellness
Hemophilia patient Pete Dyson reading a book to his young children

Telling Kids About a Parent’s Rare Disease

Five tips for keeping it simple, honest and reassuring.

13 Jun 2019 Wellness
Scenes from CSL Behring Junior National Championship

Who’s Gettin’ In the Game in 2019?

Nominations are open for this year’s Junior National Championship.

11 Jun 2019 Communities

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