Listen: Growing Up with Sickle Cell Disease
On our new podcast episode, a Sickle Cell Disease patient discusses the challenges of her transition to adulthood.
Advice for Young Sickle Cell Patients
Learn how young adult sickle cell disease patients can move out of pediatric care and…
Symptoms of von Willebrand Disease
Women who have the bleeding disorder often go undiagnosed, Duke doctor says.
Video: How to Advocate for Access to Care
One mom’s tips on speaking up for children with a rare disease.
Telling Kids About a Parent’s Rare Disease
Five tips for keeping it simple, honest and reassuring.
Michael's Journey: Winning Access to an Active Life
Hemophilia B Patient
As he prepares to head off to college, Michael is dreaming big and isn't letting his rare disease hold him back.