Think Twice Before Skipping Spring Break
Don’t miss out on making memories; use our traveling tips for rare disease patients.
A View From Inside the 'Clean Room'
Meeting the needs of rare disease patients includes keeping processes germ free.
Signs of a Bleeding Disorder
What women need to know about undiagnosed symptoms.
Tied Up in a Meeting
Kids take charge in National Hemophilia Foundation video.
Study Finds Rare Disease, Anxiety Link
Rare disease patients face isolation and need support, researcher finds.
Leading Active, Fulfilling Lives
Anyone coping with a rare disease knows first-hand how difficult and frustrating it can be to find the correct diagnosis and proper treatment for their condition. Sometimes it takes years. Yet, when the search is over, many people can – and do – lead active, fulfilling lives. Discover the story of Roberta Smith, one of our many patients thriving in the face of von Willebrand Disease.
von Willebrand Disease Patient
Roberta refuses to let von Willebrand Disease get in the way of an active and fulfilling life.