Dr. David Fajgenbaum

Listen to our new podcast about a doctor who researched his own rare disease and put it in remission.

Chasing the Cure
HAE patient Zahra Khan

3 Lessons from a patient who faced her dragon

Read about HAE patient Zahra
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HAE patient Zahra
Featured Story

3 Lessons from a Patient Who Faced Her Dragon

Born with a rare, genetic disease, an HAE patient shared her story with CSL Behring staff in Kankakee, Illinois

12 Feb 2020
team listening to a collegue

Finding Purpose-Driven Work

Serving patients and working to protect public health weaves meaning into all roles at CSL, says our Chief Human Resources Of…

25 Feb 2020
Chief Medical Officer Charmaine Gittleson in zebra striped shirt

Watch: Why Rare Disease Day Matters to Us

Patients are “core to our DNA” so take time out to recognize them and their communities, says our Chief Medical Officer.

24 Feb 2020
Hemophilia patient Michael Joshua

Meet Michael Joshua

Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.

21 Feb 2020
Dr. Fajgenbaum and book cover

Listen: Chasing the Cure

Doctor’s book tells story of researching his own rare disease.

20 Feb 2020
helping hands

To Turn Inward or Reach Out?

Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.

19 Feb 2020
Parent with child on a riding toy

Parents, Kids and Rare Disease

When a rare disease is part of family life, expect a few extra challenges.

18 Feb 2020
PI patient Lynne Doebber

Video: On Patience and Hard-to-Diagnose Illnesses

Lynne Doebber, who was ill for decades before her diagnosis, offers advice to those still searching for answers.

17 Feb 2020
Audrey Hepburn by Steven Meisel

Audrey Hepburn - an Icon for Rare Disease Advocacy

EURORDIS-Rare Diseases Europe bestows posthumous honor on the actress and humanitarian; Hepburn’s son is an advocate for rare…

14 Feb 2020
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Family Adopts a Son Who Has Hemophilia

Smith family takes a hike
The Smith family having a picnic

Meet the Smith Family

A U.S. family opens their home, and hearts, to a new son who has hemophilia.

Watch Their Story
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