Taking the Field for Rare Disease Research
Tickets now available for the Uplifting Athletes Young Investigator Draft presented by CSL Behring.
Faces of Rare Diseases
Celebrated portrait exhibit of children with rare diseases adds hemophilia painting.
The Next Generation of Rare Disease Advocates
College student Madison Shaw honored for her work on behalf of primary immunodeficien…
It’s New York vs. New England – For a Good Cause
100-day Fitness Challenge unites people who have bleeding disorders.
VIDEO: Have Alpha-1? You're Not Alone
See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.
VWD Patient Advocates for Children Living with Cancer
Mary Ann Massolio
von Willebrand Disease Patient
VWD Patient leverages knowledge of her own disease into helping families impacted by cancer. "We're all in this together," she says.