Alpha 1 Hiker Completes 2,653-Mile Trek
Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare disease.
The Search for the Next Big Thing
A leader in “disruptive innovation” shares his entrepreneurial journey with CSL Behri…
Rare and Perfect
Daughter of Beyond the Diagnosis founder Patricia Weltin scores perfect 1600 on SAT.
Watch Babies Make the News
NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies …
Video: How to Restart Your Fitness Routine
Ironman finisher Stacy Ahearn on getting back in shape after a rare disease diagnosis…
Michael's Journey: Winning Access to an Active Life
Hemophilia B Patient
As he prepares to head off to college, Michael is dreaming big and isn't letting his rare disease hold him back.