Emily Bartko riding a bike

How access to care changed the life of a teen living with a rare bleeding disorder.

M. Tortorici, CSL

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Support group

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Tahirah Austin

Listen: Growing Up with Sickle Cell Disease

On our new podcast episode, a Sickle Cell Disease patient discusses the challenges of her transition to adulthood.

18 Jun 2019 People
Sickle cell patient with support system

Advice for Young Sickle Cell Patients

Learn how young adult sickle cell disease patients can move out of pediatric care and…

19 Jun 2019 Wellness
Animated woman as superhero

Symptoms of von Willebrand Disease

Women who have the bleeding disorder often go undiagnosed, Duke doctor says.

17 Jun 2019 Wellness
Alison Bartko with her son, A.J., who is living with congenital afibrogenemia

Video: How to Advocate for Access to Care

One mom’s tips on speaking up for children with a rare disease.

14 Jun 2019 Wellness
Hemophilia patient Pete Dyson reading a book to his young children

Telling Kids About a Parent’s Rare Disease

Five tips for keeping it simple, honest and reassuring.

13 Jun 2019 Wellness
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