Young scientist in a lab working together

Our mission is to discover, develop, and deliver new therapies that improve patients' quality of life.

Hemophilia B patient Michael Joshua diving into a pool

Hemophilia B patient Michael Joshua is dreaming big and not letting anything hold him back.

klinik çalışmalar

It can be isolating having a rare disease. Read our Vita Stories to feel connected.

Rare disease patient playing guitar

Is Music Therapy a Prescription for Rare Diseases?

For some patients, rhythm and beats can complement hospitals and medication.

18 Mar 2019 Wellness
Rare disease patient James, who is living with hemophilia, during his swim from Alcatraz to San Francisco

Teens Making an Impact: Meet James

Swim from Alcatraz to San Francisco? He did it.

19 Mar 2019 Wellness
Uplifting Athletes Rare Disease Champion trophy in front of television screen with CSL Behring logo

Young Investigator Draft Awards $120,000+

CSL Behring-sponsored Uplifting Athletes event connects rare disease community.

15 Mar 2019 Communities
Chronic Inflammatory Demyelinating Polyneuropathy rare disease patient Elizabeth Thirtyacre

What One Patient Wants You to Know About CIDP

Watch Elizabeth's tips for living with the neurological disorder.

14 Mar 2019 Wellness
Runners during a race. A team representing the National Hemophilia Foundation is running in the New York City Half Marathon to raise awareness of the rare disease.

Running the NYC Half Marathon

A team representing the National Hemophilia Foundation hits the pavement.

13 Mar 2019 Wellness
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