Karen Skålvoll, Alpha 1 Deficiency patient

Karen Skålvoll puts Alpha-1 Antitrypsin Deficiency in its place.

three researchers in a lab

Innovation is in our DNA: Learn more about what's in our pipeline.

Group meeting female patient smiling

It can be isolating having a rare disease. Read our Vita Stories to feel connected.

Uplifting Athletes Young Investigator Draft presented by CSL Behring.

Taking the Field for Rare Disease Research

Tickets now available for the Uplifting Athletes Young Investigator Draft presented by CSL Behring.

15 Jan 2019 Wellness
Group of people running in the snow. The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are launching  a 100-day fitness challenge.

It’s New York vs. New England – For a Good Cause

100-day Fitness Challenge unites people who have bleeding disorders.

14 Jan 2019 Wellness
Alpha-1 antitrypsin deficiency patient Dee Kroecker

VIDEO: Have Alpha-1? You're Not Alone

See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.

11 Jan 2019 Wellness
Graphic promoting Jeffrey Modell Foundation contest.

The Best Bulletin Board Wins!

Contest invites school nurses to teach students about primary immunodeficiency.

10 Jan 2019 Wellness
Manufacturing employees at CSL Behring's leading-edge Kankakee, Illinois manufacturing site

Watch It Online: CSL Behring's 'How It's Made'

The episode follows the manufacturing process at our Kankakee, Illinois, site.

09 Jan 2019 Communities
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