HAE Patient Cheryl Blackwell-Johnson

Helping people like Cheryl lead full lives

Rare Disease Day Banner

CSL Behring honors Rare Disease Day - 28 February 2018

Hemophilia A Patient Cody Kunkel

Making a difference for patients like Cody one treatment at a time

Cheryl Blackwell-Johnson

‘For Life:’ A Family’s Promise

HAE patient Cheryl Blackwell-Johnson finds strength in her family’s unique bond.

16 Feb 2018 People
Ashley Winslow

Solving the Information Shortage

Experts say rare disease patient registries help bridge the information gap.

15 Feb 2018 Wellness
Cheryl Blackwell-Johnson and her husband, Michael, watching a sunset at the historic Baltimore Inner Harbor.

Happy Valentine’s Day from ‘Charm City’

A strong support system is critical all year when managing HAE.

14 Feb 2018 Wellness
Medical equipment

Flu and Primary Immunodeficiencies

Fast diagnosis and treatment are a must, the CDC says.

13 Feb 2018 Wellness
Heart-shaped cookie cutter next to outline of heart in cocoa dust

Chocolate for Heart Health?

Flavonoids might protect the cardiovascular system, but don’t overdo it.

12 Feb 2018 Wellness
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