Video: A Father’s Bond
How John Vieke’s daughter helped him see his rare disease in a new light.
Symptoms of von Willebrand Disease
Women who have the bleeding disorder often go undiagnosed, Duke doctor says.
Video: How to Advocate for Access to Care
One mom’s tips on speaking up for children with a rare disease.
Telling Kids About a Parent’s Rare Disease
Five tips for keeping it simple, honest and reassuring.
Who’s Gettin’ In the Game in 2019?
Nominations are open for this year’s Junior National Championship.
Michael's Journey: Winning Access to an Active Life
Hemophilia B Patient
As he prepares to head off to college, Michael is dreaming big and isn't letting his rare disease hold him back.