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VIDEO: Hitting Her Target
Mom, advocate and archery coach Machelle Pecoraro has hereditary angioedema, but she says the rare disease no longer has her.
VIDEO: When a Patient Grows Up
Mom Shonda’s advice for helping your child take charge of their rare disease.
Faces of Rare Diseases
Celebrated portrait exhibit of children with rare diseases adds hemophilia painting.
The Next Generation of Rare Disease Advocates
College student Madison Shaw honored for her work on behalf of primary immunodeficien…
Taking the Field for Rare Disease Research
Tickets now available for the Uplifting Athletes Young Investigator Draft presented b…
VWD Patient Advocates for Children Living with Cancer
Mary Ann Massolio
von Willebrand Disease Patient
VWD Patient leverages knowledge of her own disease into helping families impacted by cancer. "We're all in this together," she says.
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