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The Power of Parents
When a child has a rare disease, moms and dads dedicate themselves to the cause
VIDEO: Healthy Tips for Flu Season Travel
A primary immune deficiency patient’s advice for staying well on the road
After Sequencing 100,000 Genomes, UK Boosts Goal
Successful campaign prompts Britain to set new precision medicine targets.
The Precious Baby Project
Little ones with special needs star in Angela Forker’s imaginative scenes.
Rare Impressions
Observations and learnings from the NORD Rare Summit.
VWD Patient Advocates for Children Living with Cancer
Mary Ann Massolio
von Willebrand Disease Patient
VWD Patient leverages knowledge of her own disease into helping families impacted by cancer. "We're all in this together," she says.
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