HAE Patient Cheryl Blackwell Johnson with Husband

Strong support from caregivers is a key part of living and thriving with a rare condition.

Employees from CSL's Bio21 Lab

Four academic partnerships CSL Behring is excited about.

Young family sharing a meal

It can be isolating having a rare disease. Want to feel connected?

Alpha-1 Hiker Jonathan Maidment celebrates finish

Alpha 1 Hiker Completes 2,653-Mile Trek

Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare disease.

19 Nov 2019 Alpha 1 Antitrypsin Deficiency
Matt Campisi of UE LifeSciences at the podium

The Search for the Next Big Thing

A leader in “disruptive innovation” shares his entrepreneurial journey with CSL Behri…

20 Nov 2019 Research and Development
SAT test and pencil

Rare and Perfect

Daughter of Beyond the Diagnosis founder Patricia Weltin scores perfect 1600 on SAT.

18 Nov 2019 Rare Disease
Baby posed as a superhero

Watch Babies Make the News

NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies …

15 Nov 2019 Children
Primary Immunodeficiency patient Stacy Ahearn working out in her home gym

Video: How to Restart Your Fitness Routine

Ironman finisher Stacy Ahearn on getting back in shape after a rare disease diagnosis…

14 Nov 2019 Video
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