Dr. David Fajgenbaum

Listen to our new podcast about a doctor who researched his own rare disease and put it in remission.

Chasing the Cure
HAE patient Zahra Khan

3 Lessons from a patient who faced her dragon

Read about HAE patient Zahra
Father and son

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Featured Video

Video: What Patients Wish for Rare Disease Day

We asked patients what they want the medical community to know about them.

28 Feb 2020
IDF zebra mascot flexes his muscles

Show Your Stripes, Zebras!

Rare disease patients have adopted the zebra as an icon. Find out why.

27 Feb 2020
CIDP patient Elizabeth Thirtyacre

A Spotlight on CIDP

Learn more about this rare neurological disorder.

26 Feb 2020
team listening to a collegue

Finding Purpose-Driven Work

Serving patients and working to protect public health weaves meaning into all roles at CSL, says our Chief Human Resources Of…

25 Feb 2020
Chief Medical Officer Charmaine Gittleson in zebra striped shirt

Watch: Why Rare Disease Day Matters to Us

Patients are “core to our DNA” so take time out to recognize them and their communities, says our Chief Medical Officer.

24 Feb 2020
Hemophilia patient Michael Joshua

Meet Michael Joshua

Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.

21 Feb 2020
Dr. Fajgenbaum and book cover

Listen: Chasing the Cure

Doctor’s book tells story of researching his own rare disease.

20 Feb 2020
helping hands

To Turn Inward or Reach Out?

Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.

19 Feb 2020
Parent with child on a riding toy

Parents, Kids and Rare Disease

When a rare disease is part of family life, expect a few extra challenges.

18 Feb 2020
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Family Adopts a Son Who Has Hemophilia

Smith family takes a hike
The Smith family having a picnic

Meet the Smith Family

A U.S. family opens their home, and hearts, to a new son who has hemophilia.

Watch Their Story
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