HAE Patient Christie Hardin)

Hereditary Angioedema

Understanding Hereditary Angioedema

HAE is a rare hereditary disease that can cause attacks of swelling, and often pain, in specific parts of the body including the stomach, hands, feet, arms, legs, genitals, throat, and face. Depending on the severity of the disease, some people will have many attacks each month, while others will go months without an attack.

People with HAE are missing or have low levels of a protein called C1 esterase inhibitor (C1-INH); in some cases, the C1-INH levels are sufficient but the protein does not function properly. The defect with C1-INH lies within a person's genetic code, which is why HAE runs in families.

HAE is classified into 3 types based on what problem the genetic defect causes. A person can have low levels of C1-INH in the body (type I HAE), poorly functioning C1-INH (type II HAE), or HAE with normal functioning C1-INH (formerly known as type III HAE). The last type is extremely rare and not well understood.

  • 1 / 40,000 - 50,000

    people affected with HAE

  • 50%

    chance of someone with HAE passing it on to a child

  • 200

    200 different genetic mutations causing symptoms of HAE have been identified to date

Resources for you

allabouthae.com Provides HAE patients and their families with tips on recognizing, treating and managing HAE and offers personalized, interactive tools. Visit Website
All About HAE Facebook Page
Provides HAE patients and their families with tips on recognizing, treating and managing HAE and offers personalized, interactive tools. Visit Website
haei.org International patient organization dedicated to raising awareness of HAE around the world by joining the efforts and experience of the global HAE community to achieve optimal standards of care and treatment for all patients affected by HAE. Visit Website
haea.org

The US HAE Association website provides HAE patients and their families with a support network and a wide range of services, including physician referrals and personalized patient support.

Visit Website
 BERINERT.com   Visit Website
 HAEGARDA.com   Visit Website

Treatments Available

Availability of treatments may vary from country to country. Please be sure to visit your local CSLBehring.com site for further information.

HAEGARDA®
Human C1 Esterase Inhibitor (Subcutaneous)  Download Prescription Information Visit Website
BERINERT® Human C1 Esterase Inhibitor (IV)  Download Prescription Information
Visit Website
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