Patient Programs in USA
CSL Behring is committed to the patients we serve. This commitment is reflected in our support of programs and activities for patients with rare diseases including bleeding disorders, primary immune deficiencies, hereditary angioedema, CIDP and Alpha-1 proteinase inhibitor deficiencies. We partner with patient advocacy organizations to promote quality medical care and service, and to improve and expand educational and outreach efforts. We work with government authorities to ensure patients have access to care while also funding medical research.
Gettin' in the Game
Gettin’ in the GameSM was developed by CSL Behring to help children with bleeding disorders exercise, play sports, learn more about their disease, and share their experiences with others facing similar challenges. The program includes local events where children and their families can get sports tips from our national Gettin’ in the Game athletes and meet other children with bleeding disorders.
Junior National Championship (JNC)
Developed by CSL Behring, the Gettin’ in the Game (GIG) Junior National Championship (JNC) was the first and currently the only national sports competition designed specifically for the bleeding disorders community. The JNC features accomplished Gettin' in the Game Athletes, who themselves have been diagnosed with bleeding disorders such as hemophilia and von Willebrand disease.
Walk for Breath
Join your fellow Alphas from across the country at the annual Walk for Breath event hosted by CSL Behring. For years now, CSL Behring has created the opportunity for the Alpha 1 community to come together to celebrate our steps toward a healthier life. The annual event is hosted in conjunction with the Alpha-1 National Patient Education Conference.
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