Patient Programs in USA
CSL Behring is committed to the patients we serve. This commitment is reflected in our support of programs and activities for patients with rare diseases including bleeding disorders, primary immune deficiencies, hereditary angioedema, and Alpha-1 proteinase inhibitor deficiencies. We partner with patient advocacy organizations to promote quality medical care and service, and to improve and expand educational and outreach efforts. We work with government authorities to ensure patients have access to care while also funding medical research.
Gettin' in the GameSM
Gettin’ in the Game was developed by CSL Behring to help children with bleeding disorders exercise, play sports, learn more about their disease, and share their experiences with others facing similar challenges. The program includes local events where children and their families can get sports tips from our national Gettin’ in the Game athletes and meet other children with bleeding disorders.
Junior National Championship (JNC)
Developed by CSL Behring, the Gettin’ in the Game (GIG) Junior National Championship (JNC) was the first national golf and baseball competition designed specifically for the bleeding disorders community. The program gives children with bleeding disorders an opportunity to compete in golf and baseball and provides education and information-sharing opportunities for participants and their parents/caregivers.
My Steps for Healthy Living
This free program, designed exclusively for those affected by Alpha-1, encourages participants to walk their way toward a healthier lifestyle. My Steps for Healthy Living is a part of the CSL Behring CareZ Community.
Walk for Breath
Join your fellow Alphas from across the country at the annual Walk for Breath event hosted by CSL Behring. For years now, CSL Behring has created the opportunity for the Alpha-1 community to come together to celebrate our steps toward a healthier life. The annual event is hosted in conjunction with the Alpha-1 National Patient Education Conference.