Patients Thank Plasma Donors for Doing the Amazing
Meet three grateful patients who need plasma-derived medicines to manage their conditions.
Lessons from the Pool
Once a competitive swimmer, R&D’s Bronwyn Kingwell sees science as a sport of endurance and teamwork.
Rose Fida's Purpose Driven Career
In an interview with career site Work 180, the R&D leader says a personal loss fueled her passion to innovate for patients.
Short, sweet and once a week
Subscribe to get three stories each week about rare disease patients and biotech innovations.
Dr. Guthrie and Neonatal Screening Day 2022
Before Dr. Robert Guthrie, hospitals did not routinely test babies for serious health problems. Rare disease advocates chose …
Come Alive With Tai Chi
The slow, deliberate martial art can relax your mind and take you beyond your physical limitations.
Quiz: Are You Getting Enough Water?
Staying hydrated can be easy but it’s also part of a sophisticated balancing act for the body.
Watch: How to Be an Ally
A person can mean well and still do some harm in the process. Watch this short video for tips that build connection.