Be a Mama Bear and Other Advice for Moms
Patient advocates wish a Happy Mother’s Day to the rare disease community.
It’s a good year to learn to surf. Pro surfer Arran Strong – a rare disease advocate – explains how to get started.
Nurses Week 2021
We celebrate a profession so essential in health care, it’s often called “the glue” in a patient’s health care experience.
Short, sweet and once a week
Subscribe to get three stories each week about rare disease patients and biotech innovations.
Do COVID-19 Vaccines Protect PI Patients?
U.S. launches a study to “fill the knowledge gap” about COVID-19 and immune deficiencies.
Video: What Is Primary Immunodeficiency?
Did you know? An estimated 6 million people worldwide live with serious immune system problems.
Listen: Adapting to Change
Podcast features bleeding disorder experts in celebration of World Hemophilia Day.
Helping Golfers Get a Grip
Pro golfer and bleeding disorders advocate Perry Parker offers tips – and encouragement – for improving your game