Alpha-1 Patient Sets World Record
“Fighter vs. Fighter” pits Karen Skalvoll vs. two fighter jets.
How Do You Stop Bleeding?
Trauma surgeon explains the ABCs of bleeding to students.
Experiencing a Marburg Tradition
Summer adventures for kids whose parents work at CSL Behring’s facility in Germany.
Ready to Launch?
Three clues for knowing your child is ready to manage their rare disease.
Are You Gettin’ In the Game?
Application deadline nears to attend this year’s Junior National Championship.