CSL Behring News Hub
Vita: Sharing Stories of Biotech's Promise
Watching new rare disease TV shows

The New Diagnosis Shows

Experts find pros and cons to TV shows crowdsourcing for medical answers.

05 Nov 2019 Rare Disease
Prevalance of hemophilia in the world infographic

Getting a Handle on Hemophilia

New global data reveals the bleeding disorder is more prevalent than previously thoug…

29 Oct 2019 Hemophilia
CIDP patient Rohit does art therapy

Video: Painting the Patient Journey

What was life like before diagnosis? CIDP patient Rohit picks up a brush to explain.

17 Sep 2019 Video
timeline of C1-INH therapy

Forty Years of Knowing How

Replacing C1-INH plasma protein gives a rare disease a longed-for treatment.

10 Sep 2019 Science
Newborn screening for SCID

Newborn Screenings for Immune Deficiency

Advocates reach a milestone in the United States, press on around the globe to save l…

26 Aug 2019 Communities
Congenital afibrinogenemia patients Emily and A.J. Bartko

A Family’s Fight for Access

Ten years later, the Bartko family reflects on finding the right treatment and steppi…

29 Jul 2019 Bleeding Disorders
Doctor speaking to young boy

When Doctors Become Detectives

The Undiagnosed Diseases Network seeks answers for patients with rare conditions.

22 Jul 2019 Diagnosis
Jeffrey Modell - Do Something Documentary - yellow raincoat

Jeffrey's Parents Did Something

Film recalls a son lost to primary immunodeficiency and the legacy built in his name.

27 Jun 2019 Communities
Renate Shashoua at Marburg meeting - resized

From the Swiss Mountains to the Adriatic Sea

Meet an Alpha 1 patient who advocates for others with the rare disease

25 Jun 2019 People
Tahirah Austin

Listen: Growing Up with Sickle Cell Disease

On our new podcast episode, a Sickle Cell Disease patient discusses the challenges of…

18 Jun 2019 People
Congenital afibrinogenemia patient Emily Bartko

Emily’s Story: Access to Care Changes a Life

Video: Catching up with one patient 10 years after her family advocated for access.

05 Jun 2019 Bleeding Disorders
Natalie Metzger, director of hereditary angioedema documentary "Special Blood"

Revisiting HAE Documentary ‘Special Blood’

Director and HAE patient Natalie Metzger on putting faces to the rare disease.

08 May 2019 Wellness