Rare and Perfect
Daughter of Beyond the Diagnosis founder Patricia Weltin scores perfect 1600 on SAT.
Watch Babies Make the News
NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies …
5 Ways to Help a Friend Who Has a Rare Disease
Learn how to offer support and find out what not to say.
The New Diagnosis Shows
Experts find pros and cons to TV shows crowdsourcing for medical answers.
Video: From Patients to Caregivers: Thank You
Rare disease patients on why caregivers are so important.
Sharing the Rare Disease Experience On Screen
CSL Behring-sponsored film festival puts rare diseases in the spotlight.
5 Takeaways from the NORD Summit
What happens when you bring hundreds of rare disease patients and advocates together …
Patients and Their Pets
Managing a health problem or chronic illness? Research shows dogs, cats and other loy…
Video: Where Patients Find Support
Rare disease patients on where they look for support in managing their condition.
BIO 2019: Advocacy Requires Data
Collecting and analyzing data is critical, says one leading U.S. advocate for rare di…
Observations and learnings from the NORD Rare Summit.
Think Twice Before Skipping Spring Break
Don’t miss out on making memories; use our traveling tips for rare disease patients.