Topic

Podcast: Mark Hill on Digital Transformation

On our podcast, CSL’s Chief Digital Information Officer discusses how technology will continue to transform biotech.

What Gives Patients Hope for 2021?

Reflecting on 2020, three patients say they’re grateful for the selflessness of plasma donors and the promise of Zoom.

Last-Minute Holiday Tips

This year’s festivities, subdued though they may be, are approaching fast. Here are 4 ways to feel more jolly.

Reflecting on 2020 and Finding Hope for 2021

Leaders in the rare disease community respond to patient concerns and challenges in raising awareness amid a pandemic.

Meaningful Gift Guide 2020

Still holiday shopping? Do good and get some cool merch from patient advocacy groups.

Raising a Rare Girl

A mother’s memoir tells a story – both painful and joyful – about raising a daughter with a rare condition.

Telemedicine and Genetic Counseling

Thanks to online visits, patients can access genetic counseling despite a global pandemic.

Winter Days Don't Have to be SAD

Dark falls quickly in December. Learn how to look on the bright side.

CZI Donates $1.3 Million to Rare Disease Groups

NORD and EURORDIS receive partnership grants to “lift up patient advocates” during an uncertain time.

Rare Disease in China

CSL Behring sponsors rare disease summit in China, where the rare disease community is trying to improve quality of life for …

Virtual School: 3 Tips from a Life Coach

With many kids and parents home together, get advice for making it work.

COVID-19 and Rare Disease Patients

Survey from the National Organization for Rare Disorders shows the impact on patients.