Video: How to Find the Right Diagnosis
Rare diseases are often difficult to diagnose. We asked several patients for advice.
Family Provides Motivation for Donation
Donor looks to loved one’s illness as a reason to donate in Plasma Protein Therapeutics Association video.
What Is the J.P Morgan Healthcare Conference?
This mega-meeting in San Francisco focuses on biotech deals and investors, but rare disease advocates are also seizing the mo…
Meet the Patient of the Future
Serving tomorrow’s patient means riding a wave of technology, but don’t forget the human touch.
Sleep and Other Super Secrets of "Self-Care"
Behind the trendy term, there’s a commonsense concept that can make a difference for patients living with chronic illness.
Meaningful Gift Guide 2019
Patient advocacy groups and specialty merchants have you covered with T-shirts, ties, jewelry, pillows and more.
More Than 300M Living With Rare Diseases
New research finds 4% of global population has a rare disease.
Rare and Perfect
Daughter of Beyond the Diagnosis founder Patricia Weltin scores perfect 1600 on SAT.
Watch Babies Make the News
NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies living with rare and serious diseases.