When Care Is 600 Miles Away
Patients who need specialist care have trouble finding it in remote areas. Telemedicine has been a game changer, experts say.
The Promise of Big Data for Lung Disease Patients
The launch of an open-source repository of thousands of lung scans invites a new era of AI-assisted research into rare diseas…
Working While Rare
Get three perspectives from patients and professionals who are navigating the working world while managing a rare disease.
Back to School for K-12 Students
For kids who have rare and serious diseases, returning to class is about more than just COVID-19. Get some expert advice.
Asking for a Job Accommodation
Tailored working conditions make it possible to keep working, even when managing a rare or chronic illness.
5 Takeaways About the Power of Plasma
Recent headlines have highlighted a blood donor shortage. There also is a critical need for plasma donors as a result of the …
Explainer: What Is Occupational Therapy?
OT can help patients get back to the daily tasks of living.
How Does Genetic Counseling Work?
Genetic counselors help patients and their caregivers navigate uncertainty and take next steps.
A U.N. Resolution for Rare Disease Patients
The international rare disease community is joining together to request a statement from the United Nations that would recogn…
Explainer: What Is Scleroderma?
The condition is a category of autoimmune diseases that ‘harden’ the skin and connective tissues.
Video: How to Prepare for a Big Storm
Get advice from patients who stayed healthy through hurricanes.