CSL Behring News Hub
Vita: Sharing Stories of Biotech's Promise

Rare Disease

SAT test and pencil

Rare and Perfect

Daughter of Beyond the Diagnosis founder Patricia Weltin scores perfect 1600 on SAT.

18 Nov 2019 Rare Disease
Baby posed as a superhero

Watch Babies Make the News

NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies …

15 Nov 2019 Children
Two friends having coffee.

5 Ways to Help a Friend Who Has a Rare Disease

Learn how to offer support and find out what not to say.

07 Nov 2019 Rare Disease
Watching new rare disease TV shows

The New Diagnosis Shows

Experts find pros and cons to TV shows crowdsourcing for medical answers.

05 Nov 2019 Rare Disease
Caregiver clasps hand of patient

Video: From Patients to Caregivers: Thank You

Rare disease patients on why caregivers are so important.

04 Nov 2019 Caregivers
Rare Disease Film Festival theater screening

Sharing the Rare Disease Experience On Screen

CSL Behring-sponsored film festival puts rare diseases in the spotlight.

31 Oct 2019 Children
NORD Summit 2019 speakers

5 Takeaways from the NORD Summit

What happens when you bring hundreds of rare disease patients and advocates together …

28 Oct 2019 Rare Disease
Patients and Their Pets

Patients and Their Pets

Managing a health problem or chronic illness? Research shows dogs, cats and other loy…

23 Oct 2019 Rare Disease
How patients find support hand on shoulder

Video: Where Patients Find Support

Rare disease patients on where they look for support in managing their condition.

22 Oct 2019 Communities
NORD President and CEO Peter Saltonstall with CSL Behring's Dennis Jackman at BIO 2019 in Philadelphia

BIO 2019: Advocacy Requires Data

Collecting and analyzing data is critical, says one leading U.S. advocate for rare di…

07 Jun 2019 Rare Disease
Patrick Collins (right), Senior Director, Healthcare Policy and External Affairs, CSL Behring, moderated the panel, “Value, Pricing & the Patient Experience: How to Achieve an Effective Balance,” at the NORD Rare Summit.

Rare Impressions

Observations and learnings from the NORD Rare Summit.

12 Feb 2019 Rare Disease
Notebook, pencil, and cup of coffee laid on top of map of Colorado

Think Twice Before Skipping Spring Break

Don’t miss out on making memories; use our traveling tips for rare disease patients.

23 Mar 2018 Rare Disease