Expert advice for those with chronic illnesses: Be informed, but also protect your emotional health.
Players, Patients and Purpose
Uplifting Athletes is building a bond between U.S. college football teams and patients who have rare diseases.
Parents, Kids and Rare Disease
When a rare disease is part of family life, expect a few extra challenges.
Audrey Hepburn - an Icon for Rare Disease Advocacy
EURORDIS-Rare Diseases Europe bestows posthumous honor on the actress and humanitarian; Hepburn’s son is an advocate for rare…
Get Some Animated Advice
Our hero patient takes on issues like being undiagnosed, how to talk to the doctor and getting support from friends.
Rare As One
The Chan-Zuckerberg Foundation – yes, that Zuckerberg – awards $13.5 million in grants to rare disease patient groups.
When To Tell That Special Someone?
Those who live with rare and serious diseases wonder when to share their health status.
Take Our Rare Disease Day Quiz
Test your knowledge about this special day acknowledged around the world.