Next Stop, College
Patients offer advice for graduating high school students about managing a health condition in a university environment.
HAE and Kids
Hereditary angioedema, a challenging rare disease to manage, causes serious swelling episodes. Children can have them, too.
On Campus With a Rare Disease
For students who manage a chronic condition, COVID-19 isn’t the only back-to-school concern. Get three tips for staying healt…
COVID-19 and School
Right now, there are more questions than answers. Three experts offer advice on coping with unknowns.
Medi Teddy Update
Young rare disease patient – and nonprofit founder – continues to grow her mission to bring furry comfort to those who need i…
Can Kids Who Have Hemophilia Play Sports?
Let this video – taken at our annual event for kids with bleeding disorders – answer the question.
They Got Into the Game
More than 100 kids and teens participated in CSL Behring’s national sports competition for athletes who have bleeding disorde…
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Going to College with a Rare Disease
Shannon learned how to manage her primary immunodeficiency at college.