On Campus With a Rare Disease
For students who manage a chronic condition, COVID-19 isn’t the only back-to-school concern. Get three tips for staying healt…
COVID-19 and School
Right now, there are more questions than answers. Three experts offer advice on coping with unknowns.
Medi Teddy Update
Young rare disease patient – and nonprofit founder – continues to grow her mission to bring furry comfort to those who need i…
Can Kids Who Have Hemophilia Play Sports?
Let this video – taken at our annual event for kids with bleeding disorders – answer the question.
They Got Into the Game
More than 100 kids and teens participated in CSL Behring’s national sports competition for athletes who have bleeding disorde…
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Going to College with a Rare Disease
Shannon learned how to manage her primary immunodeficiency at college.
Advice for Young Sickle Cell Patients
Learn how young adult sickle cell disease patients can move out of pediatric care and take control of their health.