Richard Lovrich is aiming for 100 miles on his bike this month, a tribute to Alpha-1 Awareness.
Learn to Surf With Arran Strong
Dream of hopping on a board? Get tips from a pro surfer – and an advocate for people who have the rare disease Alpha 1.
Alpha 1 Hiker Treks the Continental Divide
Jonathan Maidment begins his next fundraising trek to raise awareness about the rare disease.
Medi Teddy Update
Young rare disease patient – and nonprofit founder – continues to grow her mission to bring furry comfort to those who need i…
Three Dad Stories
Every father plays his part a little differently. We checked in with a patient, a rare disease researcher and a CSL Behring l…
Santonio Holmes Tackles Sickle Cell Disease
The Steeler legend - and Dad to a son with the disease - visits our podcast to talk about his foundation that helps families …
Living With Chronic Illness, Spoon by Spoon
A patient went looking for a way to explain life with a chronic illness and came up with a metaphor that stuck.
Ironman Athlete Takes On Primary Immunodeficiency
The race has changed, but marathoner Stacy Ahearn is still pushing ahead following a rare disease diagnosis at age 40.
On Being Brave
CSL Behring’s Ann-Marie Hulstine talks about her decision to donate a kidney to a near-stranger – and how to have courage in …
Meet Tim Grams
During Bleeding Disorders Awareness Month, we recognize an accomplished athlete and outdoorsman who lives an active life desp…
Meet Michael Joshua
Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.