Videos on PI and Coronavirus Reach Thousands
Expert physician and adviser to the Immune Deficiency Foundation records regular video updates for primary immunodeficiency p…
Meet Tim Grams
During Bleeding Disorders Awareness Month, we recognize an accomplished athlete and outdoorsman who lives an active life desp…
Players, Patients and Purpose
Uplifting Athletes is building a bond between U.S. college football teams and patients who have rare diseases.
Video: What Patients Wish for Rare Disease Day
We asked patients what they want the medical community to know about them.
Get Some Animated Advice
Our hero patient takes on issues like being undiagnosed, how to talk to the doctor and getting support from friends.
A Big Thank You to Caregivers
Patients say they could not do it without the family and friends in their support systems.
Can Kids Who Have Hemophilia Play Sports?
Let this video – taken at our annual event for kids with bleeding disorders – answer the question.
Video: Getting the Right Diagnosis
At 40, Stacy Ahearn finally learned she had a primary immune deficiency.
Video: How to Find the Right Diagnosis
Rare diseases are often difficult to diagnose. We asked several patients for advice.
Working Out When You Have a PI
Ready to get more exercise? Stacy Ahearn says “my immune system might be compromised but my passion for fitness is not.”
Inspiration in a 30-Second Video
Hemophilia patient – and outdoor adventurer – Tim Grams offers advice for when life knocks you down.