Watch Babies Make the News
NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies …
Video: How to Restart Your Fitness Routine
Ironman finisher Stacy Ahearn on getting back in shape after a rare disease diagnosis…
Tips From a Parenting Pro
Hear from a mom who raised three children who have bleeding disorders and then adopte…
5 Ways to Help a Friend Who Has a Rare Disease
Learn how to offer support and find out what not to say.
Video: From Patients to Caregivers: Thank You
Rare disease patients on why caregivers are so important.
Painting What It's Like to Manage CIDP
In nine years of managing her CIDP, Rosemarie acknowledges limits but also treasures …
Video: Where Patients Find Support
Rare disease patients on where they look for support in managing their condition.
Creator of Teal Pumpkin Project shares advice on how to advocate for your children.
Celebrating Partnership With Penn State
CSL Behring named Penn State University’s Corporate Partner of the Year.
Painting the CIDP Patient Journey
Caroline, a CIDP patient, created a canvas of light and hope to capture the treatment…
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Video: Dealing With Stress and a Rare Disease
Patients share their strategies for managing stress while living with a rare conditio…