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We collaborate with rare disease organizations to promote quality medical care and services.
We offer a variety of support programs and activities for the patients we serve.
We also aim to make sure that nothing holds you back from getting the therapies you need.
We work every day as if someone’s life depends on it, because it does.
We manufacture products to treat a number of rare diseases.
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Get advice for declining invitations and claiming the time you need to refresh and recharge.
In a video from the National Hemophilia Foundation, hear from a physical therapist, who is also a hemophilia patient, about t…
On World Mental Health Day, we look at a new study from the United Kingdom that queried more than 1,000 rare disease patients…
It’s not just the elderly who need to watch out during a summer heat wave. Penn State researchers are investigating the limit…
The slow, deliberate martial art can relax your mind and take you beyond your physical limitations.
Staying hydrated can be easy but it’s also part of a sophisticated balancing act for the body.
Mindfulness-based meditation is a simple practice that can have surprising benefits for your well-being.
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