Mindfulness in Action
It can be tough to adjust to life with a serious health problem or a rare disease. Dr. Sarah Gulick helps patients enjoy life…
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Newborn Screenings for Immune Deficiency
Advocates reach a milestone in the United States, press on around the globe to save lives.
Hot Weather Advice for Patients
Heat waves strike parts of Europe and, in the U.S., even Alaska bakes
Explainer: What’s Real World Evidence?
Tapping all sources of data gives a fuller picture of patient experience.
Advice for Young Sickle Cell Patients
Learn how young adult sickle cell disease patients can move out of pediatric care and take control of their health.
Listen: Growing Up with Sickle Cell Disease
On our new podcast episode, a Sickle Cell Disease patient discusses the challenges of her transition to adulthood.
Video: How to Advocate for Access to Care
One mom’s tips on speaking up for children with a rare disease.
Video: What is Sickle Cell Disease?
Our animation explains the rare blood disorder and what CSL Behring is doing to help.
Podcast: From Heartache Comes Hope
Founders of Jeffrey Modell Foundation discuss new documentary on "World of Promise."
Video: Why Clinical Trials Matter
See why CSL Behring and ACRP are partnering to boost awareness of clinical trials.