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Vaccines Save Lives
As measles cases continue in the U.S., make sure children are protected, public healt…
Video: How to Tell Teachers About a Rare Disease
One mom's tips for ensuring a child's condition is managed in the classroom.
Managing a Rare Disease on Campus
What patients and caregivers say students should know.
Watch: How Teens Can Take Charge
See one patient's tips for teens beginning to manage their rare disease.
WATCH: Michael's Journey: Winning Access
As he prepares to head off to college, Michael Joshua is dreaming big and isn't letti…
VIDEO: Ensuring Access to Care for Kids
One mom’s Promising Tips for making sure children get what they need to stay healthy
VIDEO: When a Patient Grows Up
Mom Shonda’s advice for helping your child take charge of their rare disease.
VIDEO: Tuition, Books and Rare Diseases
See hemophilia patient Michael Joshua’s tips for choosing the right school
School, Sports and Sleepovers
Who needs to know about your child’s primary immune deficiency?
Going to School with Hemophilia
Five ways to help your child succeed.