Working Out When You Have a PI
Ready to get more exercise? Stacy Ahearn says “my immune system might be compromised but my passion for fitness is not.”
Uncovering the 50-Year Secret
Learning she had the rare genetic disease Alpha 1 led Julie MacNeil to find her birth family.
Video: How to Restart Your Fitness Routine
Ironman finisher Stacy Ahearn on getting back in shape after a rare disease diagnosis.
Video: What Can You Do Today?
Tell your healthcare team about physical limitations, says CIDP patient Elizabeth Thirtyacre.
Symptoms of von Willebrand Disease
Women who have the bleeding disorder often go undiagnosed, Duke doctor says.
Women Who Don’t Feel Heard
Survey: Almost a third of women say they must “prove” symptoms to doctors
Science Survey: Test Your Knowledge
Find out why science education is essential and test what you know.
Happy Mother's Day From Rare Disease Patients
Video: Moms living with rare diseases offer Mother's Day wishes.
New Podcast Explores a 'World of Promise'
First episode marks World Hemophilia Day, features Duke University physician.
VIDEO: Women in Biotech: The Journey
Meet some of the women who help create CSL’s leading-edge advances in science.
‘For Life:’ A Family’s Promise
HAE patient Cheryl Blackwell-Johnson finds strength in her family’s unique bond.