Booster Shots for the Immune Compromised
U.S. agencies recommend a third COVID-19 vaccine for primary immunodeficiency patients and organ transplant recipients.
Sharing Best Practices in Immunology
CSL brought together 300 researchers and clinicians from more than 30 countries for a virtual conference.
Should PI Patients Stay Masked?
Loosening rules for COVID-19-vaccinated people don’t always apply to those who are immunocompromised, the Immune Deficiency F…
A 50-Year Wait
Sabine Pitschula knew she was sick, but it took decades to uncover the cause: primary immunodeficiency.
Do COVID-19 Vaccines Protect PI Patients?
U.S. launches a study to “fill the knowledge gap” about COVID-19 and immune deficiencies.
Video: What Is Primary Immunodeficiency?
Did you know? An estimated 6 million people worldwide live with serious immune system problems.
What Gives You Hope for the New Year?
After months of fear and uncertainty, we asked the rare disease community to share what drives them forward.
Showing Their Stripes, Virtually
With large events cancelled, primary immunodeficiency patients, aka “zebras,” Zoom to complete the annual walks for PI.
COVID-19 Vaccines and PI Patients
A good news update for PI patients from Dr. Kate Sullivan: “I can be more optimistic than I have been before.”
A Progress Report for Newborn Screening
Testing babies at birth helps spot rare diseases in time to help.
COVID-19 Vaccines and Primary Immunodeficiency
Can PI patients get the vaccine and will it work for them? A doctor who advises the Immune Deficiency Foundation offers her p…