What Gives You Hope for the New Year?
After months of fear and uncertainty, we asked the rare disease community to share what drives them forward.
Showing Their Stripes, Virtually
With large events cancelled, primary immunodeficiency patients, aka “zebras,” Zoom to complete the annual walks for PI.
COVID-19 Vaccines and PI Patients
A good news update for PI patients from Dr. Kate Sullivan: “I can be more optimistic than I have been before.”
A Progress Report for Newborn Screening
Testing babies at birth helps spot rare diseases in time to help.
COVID-19 Vaccines and Primary Immunodeficiency
Can PI patients get the vaccine and will it work for them? A doctor who advises the Immune Deficiency Foundation offers her p…
Keeping the Learning Going in a Global Pandemic
Taiwan Immunoglobulin E-Academy fills a medical education need during COVID-19.
What Are Antibodies?
The Immune Deficiency Foundation’s physician adviser gives a patient-friendly explanation in light of the COVID-19 pandemic.
No Simple Answers on Re-Entering the World
Ask these three questions to assess the risk of COVID-19 for you and your children, says Dr. Kate Sullivan, an immunologist a…
Living With Chronic Illness, Spoon by Spoon
A patient went looking for a way to explain life with a chronic illness and came up with a metaphor that stuck.
They Count On You
Primary immunodeficiency patients make a direct plea for plasma donation and social distancing in IPOPI campaign.