Rare Disease Day
Planning a Virtual Rare Disease Day
Rare disease advocates will log on this year to keep the cause front and center.
Finding Purpose-Driven Work
Serving patients and working to protect public health weaves meaning into all roles at CSL, says our Chief Human Resources Of…
Watch: Why Rare Disease Day Matters to Us
Patients are “core to our DNA” so take time out to recognize them and their communities, says our Chief Medical Officer.
Meet Michael Joshua
Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.
To Turn Inward or Reach Out?
Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.
Parents, Kids and Rare Disease
When a rare disease is part of family life, expect a few extra challenges.
Video: On Patience and Hard-to-Diagnose Illnesses
Lynne Doebber, who was ill for decades before her diagnosis, offers advice to those still searching for answers.
Audrey Hepburn - an Icon for Rare Disease Advocacy
EURORDIS-Rare Diseases Europe bestows posthumous honor on the actress and humanitarian; Hepburn’s son is an advocate for rare…