Rare Disease Day
Over $22,000 Raised for Jeffrey Modell Foundation
Donation caps month of awareness leading into Rare Disease Day.
Raising Hands for Rare Disease Day
Approximately 350 million people worldwide are living with a rare disease.
Breaking Down Barriers for Patients
Why improving access to care is on my mind this February – and every day.
Rare Disease Day at National Institutes of Health
Patients, advocates and researchers to meet at the U.S. center for medical research.