Video: How to Restart Your Fitness Routine
Ironman finisher Stacy Ahearn on getting back in shape after a rare disease diagnosis…
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Video: Dealing With Stress and a Rare Disease
Patients share their strategies for managing stress while living with a rare conditio…
Video: Finding Motivation at Home
One rare disease patient on how his kids help him maintain his health.
Hemophilia and Exercise
Staying in shape is a key part of managing hemophilia.
What to Know About Antibiotics
Antibiotics are an integral part of treating patients with many rare diseases, but th…
Empowering Clothing Brand Features Alpha 1 Athlete
Karen Skålvoll joins a cast of fierce female competitors in Grrrl campaign.
Video: How to Bring Medication on Vacation
We asked patients for advice on managing their rare disease while traveling.
Do Your DNA Results Evolve?
Scientists’ understanding of DNA results may change as knowledge increases.
Video: Why My Rare Disease Doesn't Define Me
Patients on why having a rare condition is only part of their lives.
Rare Disease and Rare Weather
Get tips from primary immunodeficiency patients who have lived through hurricanes.
Hot Weather Advice for Patients
Heat waves strike parts of Europe and, in the U.S., even Alaska bakes