3 Lessons from a Patient Who Faced Her Dragon
Born with a rare, genetic disease, an HAE patient shared her story with CSL Behring staff in Kankakee, Illinois
A Wallet-Sized Way to Ensure the Right Care
HAE International’s emergency cards help physicians provide the right care in critical moments.
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Forty Years of Knowing How
Replacing C1-INH plasma protein gives a rare disease a longed-for treatment.
Video: How to Tell Teachers About a Rare Disease
One mom's tips for ensuring a child's condition is managed in the classroom.
Video: How to Bring Medication on Vacation
We asked patients for advice on managing their rare disease while traveling.
Video: Why My Rare Disease Doesn't Define Me
Patients on why having a rare condition is only part of their lives.
Turning an HAE Walk Into a Pilgrimage
Following the “Camino” in Spain, walkers will raise awareness about hereditary angioedema.
Revisiting HAE Documentary ‘Special Blood’
Director and HAE patient Natalie Metzger on putting faces to the rare disease.
Bringing Rare Disease Patients Together
Patient advocates share stories to empower others living with similar conditions.