Back to School for K-12 Students
For kids who have rare and serious diseases, returning to class is about more than just COVID-19. Get some expert advice.
Being a Kid With Sickle Cell Disease
Advocate Kyle Smith remembers missing out on fun because he was in the hospital, but says he’s grateful for the kindness of h…
Book Series Helps Kids Cope with HAE
A new installment in a children’s book series helps young patients and their friends understand what it’s like to live with a…
A Very Special Patient
A CSL Plasma employee in Alabama knows what it’s like to be on the other side. When her son was a baby, he needed plasma-base…
Be a Mama Bear and Other Advice for Moms
Patient advocates wish a Happy Mother’s Day to the rare disease community.
What to Tell the Kids About COVID-19?
A walk to kindergarten with a group of 5-year-olds gave a CSL Behring scientist an idea for a timely children’s book.
Raising a Rare Girl
A mother’s memoir tells a story – both painful and joyful – about raising a daughter with a rare condition.
Watch Online: Swimming With the Dolphins
Find out how animal therapy works and why children who have Hemophilia B went for a swim with these friendly mammals in the F…
HAE and Kids
Hereditary angioedema, a challenging rare disease to manage, causes serious swelling episodes. Children can have them, too.
A Progress Report for Newborn Screening
Testing babies at birth helps spot rare diseases in time to help.
Virtual School: 3 Tips from a Life Coach
With many kids and parents home together, get advice for making it work.