Parents, Kids and Rare Disease
When a rare disease is part of family life, expect a few extra challenges.
Can Kids Who Have Hemophilia Play Sports?
Let this video – taken at our annual event for kids with bleeding disorders – answer the question.
Watch Babies Make the News
NBC Nightly News spotlights Angela Forker’s fantastical photography featuring babies living with rare and serious diseases.
Tips From a Parenting Pro
Hear from a mom who raised three children who have bleeding disorders and then adopted a son who has hemophilia.
They Got Into the Game
More than 100 kids and teens participated in CSL Behring’s national sports competition for athletes who have bleeding disorde…
Sharing the Rare Disease Experience On Screen
CSL Behring-sponsored film festival puts rare diseases in the spotlight.
Video: Raising Kids and Managing a Rare Disease
Our patients share what it’s like to be a parent living with a rare condition.
Smith Family Adopts Son With Hemophilia
U.S. family opens their home, and hearts, to a new son who has hemophilia.
Video: Finding Motivation at Home
One rare disease patient on how his kids help him maintain his health.
Newborn Screenings for Immune Deficiency
Advocates reach a milestone in the United States, press on around the globe to save lives.