Alpha 1 Antitrypsin Deficiency
To Turn Inward or Reach Out?
Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.
Winter Advice from a Norway Native
Could “koselig” help you cozy up to the chilliest time of the year? Alpha 1 athlete Karen Skålvoll explains.
Alpha 1 Hiker Will Return to the Trail in 2020
For his third mega-hike, Jonathan Maidment will take on the 3,100-mile Continental Divide Trail.
Photographer Richard Lovrich has created an atmospheric photo series during his daily dog walks, which the rare disease patie…
Uncovering the 50-Year Secret
Learning she had the rare genetic disease Alpha 1 led Julie MacNeil to find her birth family.
Alpha 1 Hiker Completes 2,653-Mile Trek
Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare disease.
Video: Why We Ride For Patients
CSL Behring employees ride with Alpha-1 Foundation Team for Escape to the Cape.
Empowering Clothing Brand Features Alpha 1 Athlete
Karen Skålvoll joins a cast of fierce female competitors in Grrrl campaign.
Alpha 1 Patients and Cleaning Products
Some cleaning products can cause or worsen respiratory problems for those with genetic lung conditions.
From the Swiss Mountains to the Adriatic Sea
Meet an Alpha 1 patient who advocates for others with the rare disease
Bringing Rare Disease Patients Together
Patient advocates share stories to empower others living with similar conditions.