Alpha 1 Antitrypsin Deficiency
Alpha 1 Hiker Completes 2,653-Mile Trek
Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare …
Video: Why We Ride For Patients
CSL Behring employees ride with Alpha-1 Foundation Team for Escape to the Cape.
Empowering Clothing Brand Features Alpha 1 Athlete
Karen Skålvoll joins a cast of fierce female competitors in Grrrl campaign.
Alpha 1 Patients and Cleaning Products
Some cleaning products can cause or worsen respiratory problems for those with geneti…
From the Swiss Mountains to the Adriatic Sea
Meet an Alpha 1 patient who advocates for others with the rare disease
Bringing Rare Disease Patients Together
Patient advocates share stories to empower others living with similar conditions.
VIDEO: Peer-to-Peer Counseling and Rare Diseases
Talking to a fellow patient can make the newly-diagnosed feel less isolated.
One Patient’s Long Road to Diagnosis
Frank Willersinn discovered he had Alpha-1 and then became a vocal advocate.
VIDEO: Have Alpha-1? You're Not Alone
See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.
Doing the Impossible Despite Alpha-1
With feats of strength, Karen Skålvoll puts her rare lung disease in its place.
Surf’s Up, Santa
Arran Strong rides the waves to raise awareness about respiratory diseases
Are You Living With Genetic COPD?
Wheezing, breathing trouble or a cough that won’t go away are common signs.