Alpha 1 Antitrypsin Deficiency

Rocket Man

Richard Lovrich is aiming for 100 miles on his bike this month, a tribute to Alpha-1 Awareness.

Learn to Surf With Arran Strong

Dream of hopping on a board? Get tips from a pro surfer – and an advocate for people who have the rare disease Alpha 1.

Prepare, Perform, Prevail

Get 5 Lessons for navigating the rare disease Alpha 1 from a pioneering fighter pilot.

Alpha 1 Hiker Treks the Continental Divide

Jonathan Maidment begins his next fundraising trek to raise awareness about the rare disease.

Surf and Breathe

Laid-back advice from surfer and rare disease advocate Arran Strong

Plasma-Derived Medicines and Rare Diseases

One Alpha 1 patient discusses his daily routine in this Plasma Protein Therapeutics Association video.

Coronavirus: Alpha 1 Group Guides Patients

Foundation answers who’s most at risk and offered a webinar about mental health during the pandemic.

To Turn Inward or Reach Out?

Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.

Winter Advice from a Norway Native

Could “koselig” help you cozy up to the chilliest time of the year? Alpha 1 athlete Karen Skålvoll explains.

Alpha 1 Hiker Will Return to the Trail in 2020

For his third mega-hike, Jonathan Maidment will take on the 3,100-mile Continental Divide Trail.

Walking Nigel

Photographer Richard Lovrich has created an atmospheric photo series during his daily dog walks, which the rare disease patie…

Uncovering the 50-Year Secret

Learning she had the rare genetic disease Alpha 1 led Julie MacNeil to find her birth family.