Alpha 1 Antitrypsin Deficiency

Alpha 1 Hiker Completes Epic Journey

Jonathan Maidment finished the triple crown of hiking to raise funds for the rare disease Alpha 1 Antitrypsin Deficiency.

"From the Bottom of My Heart..."

Alpha 1 patients send heartfelt thanks to plasma donors and those who make life-saving, plasma-derived medicines.

Living With Alpha 1 in Belgium

The rare disease affects the lungs, causing worries about the future for Fernanda.

Rocket Man

Richard Lovrich is aiming for 100 miles on his bike this month, a tribute to Alpha-1 Awareness.

Learn to Surf With Arran Strong

Dream of hopping on a board? Get tips from a pro surfer – and an advocate for people who have the rare disease Alpha 1.

Prepare, Perform, Prevail

Get 5 Lessons for navigating the rare disease Alpha 1 from a pioneering fighter pilot.

Alpha 1 Hiker Treks the Continental Divide

Jonathan Maidment begins his next fundraising trek to raise awareness about the rare disease.

Surf and Breathe

Laid-back advice from surfer and rare disease advocate Arran Strong

Plasma-Derived Medicines and Rare Diseases

One Alpha 1 patient discusses his daily routine in this Plasma Protein Therapeutics Association video.

Coronavirus: Alpha 1 Group Guides Patients

Foundation answers who’s most at risk and offered a webinar about mental health during the pandemic.

To Turn Inward or Reach Out?

Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.

Winter Advice from a Norway Native

Could “koselig” help you cozy up to the chilliest time of the year? Alpha 1 athlete Karen Skålvoll explains.