CSL Behring News Hub
Vita: Sharing Stories of Biotech's Promise

Alpha 1 Antitrypsin Deficiency

Alpha-1 Hiker Jonathan Maidment

Alpha 1 Hiker Completes 2,653-Mile Trek

Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare …

19 Nov 2019 Alpha 1 Antitrypsin Deficiency
CSL Behring Escape to the Cape team riders

Video: Why We Ride For Patients

CSL Behring employees ride with Alpha-1 Foundation Team for Escape to the Cape.

26 Sep 2019 Alpha 1 Antitrypsin Deficiency
Karen Skalvoll in Grrrl campaign Alpha 1

Empowering Clothing Brand Features Alpha 1 Athlete

Karen Skålvoll joins a cast of fierce female competitors in Grrrl campaign.

13 Aug 2019 Communities
Alpha 1 cleaning images

Alpha 1 Patients and Cleaning Products

Some cleaning products can cause or worsen respiratory problems for those with geneti…

10 Jul 2019 Alpha 1 Antitrypsin Deficiency
Renate Shashoua at Marburg meeting - resized

From the Swiss Mountains to the Adriatic Sea

Meet an Alpha 1 patient who advocates for others with the rare disease

25 Jun 2019 People
Rare disease patients talking at CSL rare disease patient summit

Bringing Rare Disease Patients Together

Patient advocates share stories to empower others living with similar conditions.

05 Apr 2019 Wellness
Two rare disease patients during a peer-to-peer counseling session

VIDEO: Peer-to-Peer Counseling and Rare Diseases

Talking to a fellow patient can make the newly-diagnosed feel less isolated.

28 Mar 2019 Wellness
Frank Willersinn, who is living with the rare genetic respiratory disease alpha-1 antitrypsin deficiency

One Patient’s Long Road to Diagnosis

Frank Willersinn discovered he had Alpha-1 and then became a vocal advocate.

27 Mar 2019 Alpha 1 Antitrypsin Deficiency
Alpha-1 antitrypsin deficiency patient Dee Kroecker

VIDEO: Have Alpha-1? You're Not Alone

See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.

11 Jan 2019 Alpha 1 Antitrypsin Deficiency
Karen Skalvoll

Doing the Impossible Despite Alpha-1

With feats of strength, Karen Skålvoll puts her rare lung disease in its place.

08 Jan 2019 Alpha 1 Antitrypsin Deficiency
Pro surfer Arran Strong wearing a Santa costume before riding the waves to raise awareness about respiratory diseases

Surf’s Up, Santa

Arran Strong rides the waves to raise awareness about respiratory diseases

13 Dec 2018 Holidays
Genetic COPD or Alpha-1 antitrypsin deficiency patient Dee Kroecker

Are You Living With Genetic COPD?

Wheezing, breathing trouble or a cough that won’t go away are common signs.

14 Nov 2018 Alpha 1 Antitrypsin Deficiency