Alpha 1 Antitrypsin Deficiency
Richard Lovrich is aiming for 100 miles on his bike this month, a tribute to Alpha-1 Awareness.
Learn to Surf With Arran Strong
Dream of hopping on a board? Get tips from a pro surfer – and an advocate for people who have the rare disease Alpha 1.
Prepare, Perform, Prevail
Get 5 Lessons for navigating the rare disease Alpha 1 from a pioneering fighter pilot.
Alpha 1 Hiker Treks the Continental Divide
Jonathan Maidment begins his next fundraising trek to raise awareness about the rare disease.
Plasma-Derived Medicines and Rare Diseases
One Alpha 1 patient discusses his daily routine in this Plasma Protein Therapeutics Association video.
Coronavirus: Alpha 1 Group Guides Patients
Foundation answers who’s most at risk and offered a webinar about mental health during the pandemic.
To Turn Inward or Reach Out?
Alpha 1 patient – and advocate for others – Richard Lovrich shares his philosophy about coping with a rare disease.
Winter Advice from a Norway Native
Could “koselig” help you cozy up to the chilliest time of the year? Alpha 1 athlete Karen Skålvoll explains.
Alpha 1 Hiker Will Return to the Trail in 2020
For his third mega-hike, Jonathan Maidment will take on the 3,100-mile Continental Divide Trail.
Photographer Richard Lovrich has created an atmospheric photo series during his daily dog walks, which the rare disease patie…