Alpha 1 Antitrypsin Deficiency
Uncovering the 50-Year Secret
Learning she had the rare genetic disease Alpha 1 led Julie MacNeil to find her birth family.
Alpha 1 Hiker Completes 2,653-Mile Trek
Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare disease.
Video: Why We Ride For Patients
CSL Behring employees ride with Alpha-1 Foundation Team for Escape to the Cape.
Empowering Clothing Brand Features Alpha 1 Athlete
Karen Skålvoll joins a cast of fierce female competitors in Grrrl campaign.
Alpha 1 Patients and Cleaning Products
Some cleaning products can cause or worsen respiratory problems for those with genetic lung conditions.
From the Swiss Mountains to the Adriatic Sea
Meet an Alpha 1 patient who advocates for others with the rare disease
Bringing Rare Disease Patients Together
Patient advocates share stories to empower others living with similar conditions.
VIDEO: Peer-to-Peer Counseling and Rare Diseases
Talking to a fellow patient can make the newly-diagnosed feel less isolated.
One Patient’s Long Road to Diagnosis
Frank Willersinn discovered he had Alpha-1 and then became a vocal advocate.
VIDEO: Have Alpha-1? You're Not Alone
See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.
Doing the Impossible Despite Alpha-1
With feats of strength, Karen Skålvoll puts her rare lung disease in its place.