Alpha 1 Antitrypsin Deficiency
It’s a good year to learn to surf. Pro surfer Arran Strong – a rare disease advocate – explains how to get started.
At home in Germany, Alpha 1 Athlete Karen Skålvoll misses travel and competitions. These days, you can find her in the garden…
Stay Safe With "Sharps"
An expert nurse offers advice for patients who self-infuse medicines at home.
Alpha 1 Hiker Completes Epic Journey
Jonathan Maidment finished the triple crown of hiking to raise funds for the rare disease Alpha 1 Antitrypsin Deficiency.
"From the Bottom of My Heart..."
Alpha 1 patients send heartfelt thanks to plasma donors and those who make life-saving, plasma-derived medicines.
Living With Alpha 1 in Belgium
The rare disease affects the lungs, causing worries about the future for Fernanda.
Richard Lovrich is aiming for 100 miles on his bike this month, a tribute to Alpha-1 Awareness.
Learn to Surf With Arran Strong
Dream of hopping on a board? Get tips from a pro surfer – and an advocate for people who have the rare disease Alpha 1.
Prepare, Perform, Prevail
Get 5 Lessons for navigating the rare disease Alpha 1 from a pioneering fighter pilot.
Alpha 1 Hiker Treks the Continental Divide
Jonathan Maidment begins his next fundraising trek to raise awareness about the rare disease.