Audrey Hepburn - an Icon for Rare Disease Advocacy
EURORDIS-Rare Diseases Europe bestows posthumous honor on the actress and humanitarian; Hepburn’s son is an advocate for rare…
3 Lessons from a Patient Who Faced Her Dragon
Born with a rare, genetic disease, an HAE patient shared her story with CSL Behring staff in Kankakee, Illinois
Winter Advice from a Norway Native
Could “koselig” help you cozy up to the chilliest time of the year? Alpha 1 athlete Karen Skålvoll explains.
Bern In Winter
Employees in Switzerland share frosty photos from historic Bern, a dream destination for cold-weather travelers.
Photographer Richard Lovrich has created an atmospheric photo series during his daily dog walks, which the rare disease patie…
Four Career Resolutions to Make in 2020
Chief Human Resources Officer Elizabeth Walker offers advice for driving your professional success.
Sleep and Other Super Secrets of "Self-Care"
Behind the trendy term, there’s a commonsense concept that can make a difference for patients living with chronic illness.
Alpha 1 Hiker Completes 2,653-Mile Trek
Despite setbacks, Jonathan Maidment didn’t give up - and raised $60,000 for the rare disease.