Celebrating Partnership With Penn State
CSL Behring named Penn State University’s Corporate Partner of the Year.
Video: Why We Ride For Patients
CSL Behring employees ride with Alpha-1 Foundation Team for Escape to the Cape.
Messages of Hope: Tim Grams
Former college swimmer on breaking down rare disease barriers
Telling Kids About a Parent’s Rare Disease
Five tips for keeping it simple, honest and reassuring.
One Patient’s Long Road to Diagnosis
Frank Willersinn discovered he had Alpha-1 and then became a vocal advocate.
Messages of Hope: Hector Grisalez
A family can not only manage, but thrive in spite of a rare disease.
WATCH: Michael's Journey: Winning Access
As he prepares to head off to college, Michael Joshua is dreaming big and isn't letti…
VIDEO: When a Patient Grows Up
Mom Shonda’s advice for helping your child take charge of their rare disease.
VIDEO: Tuition, Books and Rare Diseases
See hemophilia patient Michael Joshua’s tips for choosing the right school
Are You Living With Genetic COPD?
Wheezing, breathing trouble or a cough that won’t go away are common signs.
Who Should Know About Your Rare Disease?
Hemophilia A patient Cody Kunkel offers his advice for managing a serious condition.
The Most Interesting Thing About Me
Hint: It’s not that I have von Willebrand Disease