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Video: What Patients Wish for Rare Disease Day

We asked patients what they want the medical community to know about them.


Every day in February, we’re sharing content about rare diseases in anticipation of Rare Disease Day on the last day of the month. Today, patients talk about medical care and ask those who work within the health care system to address the needs of rare disease patients.

Saturday is Rare Disease Day. At CSL Behring, we see it as an important time to reflect and ensure we are doing everything we can to help rare disease patients. With that in mind, we asked some of our patients in the video above what they would like to tell the medical community on Rare Disease Day.

One piece of advice from hemophilia patient John Vieke is for doctors to treat each patient as an individual and listen to their unique concerns. For more of their messages, play the video.