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Meet Michael Joshua

Student, swimmer and Hemophilia B patient says his rare disease won’t hold him back.


As a young adult with a life full of activity, Michael Joshua is redefining what it looks like to live with a rare disease. Now in his first year of college, the Baton Rouge, Louisiana, native has worked to find the right balance in order to manage his disease, maintain his health and stay on top of his studies. For some of his insights, check out the video above or click on some of our stories below.

Going to School with Hemophilia

Tuition, Books and Rare Diseases

How Teens Can Take Charge of Rare Diseases

Transition Time: When a Patient Grows Up