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Mapping the Patient Experience

Patients go through similar stages on their way to managing a disease, and yet everyone’s story is a little different.


One reason patients find such community and comfort in one another is that they have walked similar paths. Understanding the patient experience can be useful to patients and to the people who work with them in healthcare, in biotech and as advocates. In this infographic, check out the different stages and hear some advice from a hemophilia patient about how to respect individual experiences.

For more about the different phases, watch these videos about four patients who are living with chronic inflammatory demyelinating polyneuropathy (CIDP).




Managing the disease

Four stages of patient experience from prediagnosis to management of disease