The Chan Zuckerberg Initiative (CZI) is continuing its support for the rare disease community with a $1.3 million grant to the National Organization for Rare Disorders (NORD) and EURORDIS-Rare Diseases Europe.
The funds, given through CZI’s Rare As One Project, are intended to help patients and families in accelerating research, build awareness campaigns and expand programs. Rare as One, which previously awarded grants to smaller groups, wants rare disease organizations to have the infrastructure to be effective partners in research.
“With these new grants, we’re honored to partner with two organizations that are dedicated to improving the lives of millions of individuals living with rare disease,” said Tania Simoncelli, CZI Science Policy Director and Rare As One Project lead. “NORD and EURORDIS are leaders in the rare disease community and provide critical support, training, and mentorship for their member organizations. As we fight COVID-19, it is more important than ever to support their efforts to lift up patient advocates and strengthen rare disease organizations, many of whom are vulnerable during this uncertain time.”