As the COVID-19 pandemic continues around the world, rare disease patient groups continue to provide support and outreach to their communities. For the World Federation of Hemophilia (WFH), this year is an especially important one to mark World Hemophilia Day on April 17.
“Particularly in light of what we’re all experiencing right now, I think the most important thing is that our global bleeding disorders community stays connected,” says Jennifer Laliberté, Director, Strategic and Community Partnerships for WFH on a new episode of the World of Promise podcast. She said celebrating World Hemophilia Day, which this year marks 30-plus years of raising awareness for hemophilia and other bleeding disorders, is a way to demonstrate the solidarity of the community. “We stand together (and) we continue to maintain those links that unite us, and those common goals that unite us,” she says during the interview, which also features Dr. Assad Haffar, Medical and Humanitarian Aid Director for WFH.
The conversation with podcast host Anthony Farina also touches on what World Hemophilia Day has accomplished throughout its 30-plus years and why it is important to WFH that access to care for people with bleeding disorders is a priority, no matter where in the world patients are located.Listen to the conversation by clicking the podcast player above or by searching for “World of Promise” on Apple Podcasts, Spotify and other places where podcasts are available.