Drive-Through Santa Visits

Employees in Kankakee, Illinois, found creative ways to keep up traditions in 2020.

Reflecting on 2020 and Finding Hope for 2021

Leaders in the rare disease community respond to patient concerns and challenges in raising awareness amid a pandemic.

A Winter Glow in Marburg

In a year without the world-famous Christmas markets, the city of Marburg finds a way to light the night.

A Cycling Career Extended

British cyclist Alex Dowsett thought his cycling career was winding down. Then Dowsett, who has hemophilia, won Stage 8 of th…

What Gives You Hope for the New Year?

After months of fear and uncertainty, we asked the rare disease community to share what drives them forward.

A New Home for R&D in Germany

A world-class facility for 500 researchers is set to open in Marburg in the second half of 2022.

A Soldier in the COVID-19 Survivor Corps

“I was a day or two from death,” says Scott Cohen, who lost his father to the virus. He now advocates for others.

Showing Their Stripes, Virtually

With large events cancelled, primary immunodeficiency patients, aka “zebras,” Zoom to complete the annual walks for PI.