Advocacy Groups Move to Protect Patient Access to Care

Patient groups join together to support patient protections.

The U.S. Capitol building in Washington D.C.

More than two dozen patient groups, including several representing rare disease patients, have joined together with the National Organization for Rare Disorders (NORD) to stand behind the Affordable Care Act (ACA) in the U.S.

In a joint statement posted to NORD’s website, the groups outlined their support for a bill in the U.S. Congress that would strengthen the ACA’s protection for coverage of pre-existing conditions. The statement also details the patient groups’ opposition to a White House move to support legal efforts to strike down the ACA.

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In the statement, the groups say “the ACA made great strides in improving health care in our nation by breaking down the barriers to coverage faced by people with chronic disease, disability, and other serious health conditions.” Adding that, “repeated attempts to weaken the ACA have resurrected some of those barriers and put the stability of the ACA insurance markets at risk.”

Among other groups joining with NORD are the National Hemophilia Foundation, the Hemophilia Federation of America and the Immune Deficiency Foundation.