Strong support from caregivers is a key part of living and thriving with a rare condition. In this video, we asked some of our patients what they would like to say to those caring for people living with a rare disease. Their answers contained a common word: thanks.
Video: From Patients to Caregivers: Thank You
November is National Family Caregivers Month in the U.S. See some of our rare disease patients tell why caregivers are so important.