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How Teens Can Take Charge of Rare Diseases

See one patient's tips for teens beginning to manage their rare disease.



Managing health is one of the many responsibilities teens and young adults take on as they grow up. For someone with a rare disease, that could mean dealing directly with doctors or making sure the right accommodations at school or work are available to help manage their condition. Michael Joshua, who is living with hemophilia B, is preparing to head off to college in the fall. He says teens with a rare condition should learn as much as they can about their disease so they can make the right choices in life. See more of his tips in the video above.

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