Skip to main content

CSL Behring Raises Over $22,000 for Jeffrey Modell Foundation

Donation caps month of awareness leading into Rare Disease Day.



Global biotechnology leader CSL Behring will donate more than $22,000 to the Jeffrey Modell Foundation as part of the company’s month-long lead-in to Rare Disease Day, which aims to raise awareness of the more than 7,000 rare diseases impacting approximately 350 million people worldwide.

Get the latest stories from Vita by signing up for our newsletter.

The Jeffrey Modell Foundation focuses on patients living with primary immunodeficiency. Vicki and Fred Modell, made it their life work to advance the cause of primary immunodeficiency diseases. They launched their mission after their 15-year-old son, Jeffrey, died of related complications in 1986. A new documentary, to be released this year, tells the story of grieving parents who followed their son’s demand that they “do something.” For more than 30 years, the Jeffrey Modell Foundation has led a global effort to better diagnose and treat primary immunodeficiencies by establishing Jeffrey Modell Diagnostic and Research Centers in 86 countries.

Watch this thank you message above CSL created for its more than 22,000 employees around the world.