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How to Advocate for Access to Care

One mom’s tips on speaking up for children with a rare disease.



As a mom of two children living with congenital afibrinogenemia, an ultra-rare bleeding disorder, Alison Bartko has had to learn how to navigate the healthcare system in order to get her kids the right access to care. She advises parents to be vocal on behalf of their children in order to open the right doors. See more of her Promising Tips in the video above. 

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