Uplifting Athletes Young Investigator Draft presented by CSL Behring.

Taking the Field for Rare Disease Research

Tickets now available for the Uplifting Athletes Young Investigator Draft presented by CSL Behring.

15 Jan 2019 Wellness
College student Madison Shaw honored for her work on behalf of primary immunodeficiency patients

The Next Generation of Rare Disease Advocates

College student Madison Shaw honored for her work on behalf of primary immunodeficien…

16 Jan 2019 Wellness
Group of people running in the snow. The New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are launching  a 100-day fitness challenge.

It’s New York vs. New England – For a Good Cause

100-day Fitness Challenge unites people who have bleeding disorders.

14 Jan 2019 Wellness
Alpha-1 antitrypsin deficiency patient Dee Kroecker

VIDEO: Have Alpha-1? You're Not Alone

See Alpha-1 patient Dee's tips for those just diagnosed with this rare disease.

11 Jan 2019 Wellness
Graphic promoting Jeffrey Modell Foundation contest.

The Best Bulletin Board Wins!

Contest invites school nurses to teach students about primary immunodeficiency.

10 Jan 2019 Wellness