Why Getting Diagnosed is ‘Half the Battle’

Annette on getting access to care after her daughter’s rare disease diagnosis.

 

Living with a rare disease can often mean a years-long wait for an accurate diagnosis. One recent study found that it took rare disease patients a mean of 4.8-years before finding out their condition. That’s why Annette Gregory, whose daughter, Baylee, has a primary immunodeficiency disease, says getting access to the right diagnosis is “half the battle” to finding the right care. See more of Annette’s Promising Tips in the video above.

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