It’s that time of year. Thanks to hemophilia chapters across the United States, summer camps are welcoming kids who have bleeding disorders for a week of sun, fun and s’mores.
The summer camps, with names like Camp Klotty Pine and Camp Notaclotamongus, also offer a unique opportunity for peer-to-peer connections and role modeling. Many children start learning to self-infuse the medicine they need at summer camp, where they get instruction and can even receive the “Big Stick” award for learning to infuse their therapy entirely on their own. The National Hemophilia Foundation provides a list of camp opportunities, which run from May to October.
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Learn more about summer experiences for children who have rare and serious diseases: Summer Fun for All.
Learn more about self infusion:
Helping a Child Learn to Self-Infuse
Video: 7 Clues Your Child Is Ready to Self-Infuse
(Photo provided by the Arizona Hemophilia Association)