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Dealing With a Child's Diagnosis

Mom Cheryl French on what to do after learning of your child's rare disease.


Hereditary angioedema (HAE) patient Cheryl French is also raising a child with the rare condition. One of her tips for parents of newly-diagnosed rare disease patients is to prepare themselves with all of the available information of their child's condition.

As she puts it: "You will be the first line of defense for your child's care."

Watch the rest of Cheryl's tips in the video above. 

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