What is Primary Immunodeficiency?
Your immune system keeps you healthy by fighting off germs. But people living with primary immunodeficiency disease (PID, sometimes known as PI or PIDD) have an immune system that is not working properly, beginning at birth. For people living with PID, infections may not go away or can come back often, even with the use of antibiotics. Infections may be common, severe, long-lasting, or hard to cure, but once correctly diagnosed and treated, people with PID can live full and active lives.
What are the signs of Primary Immunodeficiency?
The National Institutes of Health estimates that there are approximately 500,000 Americans with undiagnosed PID. PID often goes untreated because there are no unique or specific symptoms, but there are common signs.Learn About the 10 Warning Signs
How is Primary Immunodeficiency diagnosed?
If you believe you might have PID, the first step is to get an expert evaluation. An immune system specialist, called an immunologist, can help with diagnosis and treatment. When an immunologist evaluates your immune system, the evaluation may include: a detailed medical history, a physical exam, blood tests and vaccines to test your immune response.Learn More About Diagnosis
Here is a sampling of our Vita stories on Primary Immunodeficiency:
To read all of our stories, please visit our Vita Stories page.
School, Sports and Sleepovers for Kids Who Have PI
Who needs to know about your child’s primary immune deficiency?
The Facts About Primary Immunodeficiency (PI) Diseases
World PI Week promotes the early testing and diagnosis of primary immunodeficiencies.
Showing Stripes for Immunodeficiency Patients
Why the zebra symbolizes hope and progress in the rare disease community.