Primary Immunodeficiency

What is Primary Immunodeficiency?

Your immune system keeps you healthy by fighting off germs. But people living with primary immunodeficiency disease (PIDD, sometimes known as just PI) have an immune system that is not working properly, beginning at birth. For people living with PI, infections may not go away or can come back often, even with the use of antibiotics. Infections may be common, severe, long-lasting, or hard to cure, but once correctly diagnosed and treated, people with PI can live full and active lives.

Resources for you

RESOURCE DESCRIPTION
Caring for a Child with PI As the parent or caregiver of a child living with PI, you are an important member of his or her healthcare team. You have to be aware of your child's symptoms and responses to treatment in order to effectively communicate with the healthcare team.
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Tips for Adults and Children Living with PI These tips from the Immune Deficiency Foundation can help make it easier to manage your or your loved one's condition. View Website 
Jeffrey Modell Foundation Answers, expert referrals, patient connections and patient organizations for people living with primary and secondary immunodeficiencies. View Website 
International Patient Organization for Primary Immunodeficiencies Improving awareness, diagnosis and treatment of primary immunodeficiencies worldwide.
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Immune Deficiency Foundation U.S. national patient organization dedicated to improving the diagnosis, treatment and quality of life of people with primary immunodeficiency diseases.
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Product Websites Hizentra.co.uk (United Kingdom)
Hizentra.com (United States)
Hizentra.de (Germany)
Privigen.com (United States)
Privigen.de (Germany)

Treatments Available

Privigen® Immune Globulin Intravenous (Human) 10% Liquid Visit Website file
Hizentra® Immune Globulin Subcutaneous (Human) 20% Liquid Visit Website file
Carimune® NF / Sandoglobulin® / Redimune® / Sanglopor® Immune Globulin Intravenous(Human) file
Test tubes

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