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LEAD Grants & Raise Your Voice USA

Local Empowerment for Advocacy Development

No one knows their condition and the barriers they face better than our patients, and we believe in enabling them to be their own best advocates for better care. We offer two unique advocacy programs that help at the patient organization level, LEAD Grants and Raise Your Voice!

CSL Behring Local Empowerment for Advocacy Development (LEAD) Grants are community-based grants of approximately $10,000. These grants are intended to help local patient organizations achieve their advocacy objectives. CSL Behring will award LEAD Grants to organizations that submit proposals demonstrating that financial assistance would help them address important local and state advocacy issues and initiatives.

Local patient organizations have already demonstrated significant leadership in tackling complex legislative and regulatory public policy issues. Advocacy can, however, be costly. CSL Behring LEAD Grants will help defray these costs. Moreover, CSL Behring will work with the grant recipients to advance their objectives in order to obtain success.

If you would like to learn more, please contact advocacy@cslbehring.com.

Qualifying Criteria

In order to qualify, a local organization must be:
- a recognized patient advocacy organization representing individuals who use plasma/recombinant therapies to treat bleeding disorders, immune disorders, Alpha-1 deficiency or other conditions
- a nonprofit organization with 501(c)(3) tax status
- an organization currently addressing a specific advocacy issue or intending to address such an issue

Examples

Examples of advocacy issues for a LEAD Grant:
- Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived and recombinant therapies
- The pursuit of standard-of-care or quality-of-care legislation or regulations for plasma-derived therapies and their recombinant alternatives
- Efforts to defeat or overturn restrictive formulary proposals by a state Medicaid or an insurer
- The pursuit of legislation or regulations that will increase access for individuals to obtain their plasma-derived or recombinant therapy
- The creation of a grassroots program/database to lobby the state legislature
- Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived and recombinant therapies

How to Apply

Complete and submit the grant application request form. Applications will be judged on the appropriateness of the proposed usage and the advocacy issue being addressed. Deadlines for submitting LEAD Grants proposals are April 30 and October 31. The grants are awarded annually in June and December.

LEAD Grant Application
Download PDF
LEAD Grant Application   Download Word

Raise Your Voice!

CSL Behring also offers Raise Your Voice!, a youth empowerment program designed to assist state patient organizations with their advocacy initiatives. This program will provide youth with the training and skills necessary to apply their energy, unique insights, perspectives and experience to public policy discussions. By imparting youth with these essential skills, they will be inspired, motivated and empowered to affect meaningful change.
In recent years, advocacy has become a priority focus of state patient organizations. State organizations have demonstrated leadership in tackling complex legislative and regulatory public policy issues. In addition, these organizations are seeking ways to increase their capacity and their ability to influence public policy decisions in order to ensure access to therapies and services.

Next generation of advocates
CSL Behring is also a leader in advocacy and desires to expand ongoing collaborative efforts with patient advocacy organizations to address pressing public policy issues. Raise Your Voice! not only provides additional resources with which to impact public policy, but also provides training for the next generation of advocates.

 Raise Your Voice! provides experiential learning for youth to develop:

• A basic understanding of state health care policy and the potential threats/opportunities for access to therapies and services;
• An understanding of political systems and the forum they provide for effective resolution of social and economic issues and concerns;
• Interaction with adults and youth leaders (community, business and government) involved in decision-making processes;
• Exploration of careers that can favorably impact public policy;
• An awareness of each individual’s own leadership potential; and
• The leadership skills essential to fully participate in the democratic process.

If you would like to learn more, please contact advocacy@cslbehring.com.

How to Qualify

State Organizations

Be a recognized patient advocacy organization representing individuals reliant on blood plasma therapies or their recombinant alternatives. Be a non-profit organization with 501(c)(3) tax-exempt status.

Youth Participants

Age 16 - 22 years, and wearing appropriate business attire.

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