Rare Disease Day
Rare Disease Day is 28 February
CSL Behring joins patient advocacy groups worldwide in working to improve access to care for patients with rare diseases.
Video: Do Something – The Jeffrey Modell Story
After a rare disease takes the life of their young son, a couple’s enduring love for each other gives them the strength to fulfill their promise to him.Watch Video
Faces of Rare Diseases
Celebrated portrait exhibit of children with rare diseases adds hemophilia painting.
Advice for the Undiagnosed
How can patients solve medical mysteries?
Discrimination at Work: A Patient's Guide
Three things patients need to know.
Welcoming the Next Generation of Rare Disease Advocates
College student Madison Shaw honored for her work on behalf of primary immunodeficiency patients.
10 Tips on Rare Disease Advocacy
Check out this new video from the National Organization of Rare Disorders (NORD) featuring 10 rare disease patient advocates sharing their best tips based on their experience.
Observations and learnings from the NORD Rare Summit.
The Power of Parents
When a child has a rare disease, moms and dads dedicate themselves to the cause.