Rare Disease Day)

Rare Disease Day

Rare Disease Day is 28 February

CSL Behring joins patient advocacy groups worldwide in working to improve access to care for patients with rare diseases.

Global biotech leader CSL Behring's infographic on rare diseases

Infographic: The Facts on Rare Diseases

How can you tell if a disease is rare? Find out in our infographic.

Infographic
Jeffrey Modell

Video: Do Something – The Jeffrey Modell Story

After a rare disease takes the life of their young son, a couple’s enduring love for each other gives them the strength to fulfill their promise to him.

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Mason (left) and Miles Johannsen both have severe hemophilia A. Their portrait has been added to the “Beyond the Diagnosis” exhibit of paintings of children with rare diseases.
Faces of Rare Diseases

Celebrated portrait exhibit of children with rare diseases adds hemophilia painting.

Still from CSL Behring animated video on advice for undiagnosed rare disease patients
Advice for the Undiagnosed

How can patients solve medical mysteries?

Two  warehouse workers gossiping about a colleague
Discrimination at Work: A Patient's Guide

Three things patients need to know.

College student Madison Shaw honored for her work on behalf of primary immunodeficiency patients
Welcoming the Next Generation of Rare Disease Advocates

College student Madison Shaw honored for her work on behalf of primary immunodeficiency patients.

10 Tips
10 Tips on Rare Disease Advocacy

Check out this new video from the National Organization of Rare Disorders (NORD) featuring 10 rare disease patient advocates sharing their best tips based on their experience.

Patrick Collins (right), Senior Director, Healthcare Policy and External Affairs, CSL Behring, moderated the panel, “Value, Pricing & the Patient Experience: How to Achieve an Effective Balance,” at the NORD Rare Summit.
Rare Impressions

Observations and learnings from the NORD Rare Summit.