Hereditary Angioedema Patient Machelle Pecoraro

VIDEO: Hitting Her Target

Mom, advocate and archery coach Machelle Pecoraro has hereditary angioedema, but she says the rare disease no longer has her.

21 Jan 2019 Wellness
Hemophilia patient Michael Joshua walking alongside his mother, Shonda.

VIDEO: When a Patient Grows Up

Mom Shonda’s advice for helping your child take charge of their rare disease.

18 Jan 2019 Wellness
Mason (left) and Miles Johannsen both have severe hemophilia A. Their portrait has been added to the “Beyond the Diagnosis” exhibit of paintings of children with rare diseases.

Faces of Rare Diseases

Celebrated portrait exhibit of children with rare diseases adds hemophilia painting.

17 Jan 2019 Wellness
College student Madison Shaw honored for her work on behalf of primary immunodeficiency patients

The Next Generation of Rare Disease Advocates

College student Madison Shaw honored for her work on behalf of primary immunodeficien…

16 Jan 2019 Wellness
Graphic announcing Uplifting Athletes Young Investigator Draft presented by CSL Behring on March 9, 2019

Taking the Field for Rare Disease Research

Tickets now available for the Uplifting Athletes Young Investigator Draft presented b…

15 Jan 2019 Wellness

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