Ironman Athlete Takes On Primary Immunodeficiency
The race has changed, but marathoner Stacy Ahearn is still pushing ahead following a rare disease diagnosis at age 40.
Hopes and Fears About Sharing Medical Data
Study: More than 2,000 rare disease patients say they’re willing to share personal medical data to spur innovation, but they …
Everyone Has a Plan Until Everything Changes
A research cardiologist at CSL Behring chronicles how the world of science is rolling forward, despite a global pandemic.
Stay Cool: 3 Tips for Protecting Your Meds
Infused medicines need extra care in hot, summer weather. Traveling or not, here’s how to keep them at the right temperature.
Celebrities Join Plasma Donation Campaign
“Let’s take the fight to COVID-19,” says Jackson, known for iconic roles in “Pulp Fiction” and “The Avengers.”
5 Things To Know About Hemophilia B
Hemophilia B patients are missing clotting Factor IX but treatments have come a long way - with more innovation in progress.
Medi Teddy Update
Young rare disease patient – and nonprofit founder – continues to grow her mission to bring furry comfort to those who need i…
Celebrating Research While Sports Are on Hold
CSL Behring-sponsored Uplifting Athletes event provides $100,000+ in research grants.
Family Adopts a Son Who Has Hemophilia
Meet the Smith Family
A U.S. family opens their home, and hearts, to a new son who has hemophilia.