Survey to Capture Diverse Perspectives
NORD and the Rare Disease Diversity Coalition form a partnership to shed light on access for underrepresented patients.
Planning for the Busy Holiday Season
For people who live with rare and chronic illness, the holiday whirlwind sometimes calls for “plan B.”
Watch: Arthur's CIDP Story
Arthur is stepping forward for those also living with chronic inflammatory demyelinating polyneuropathy (CIDP).
Listen: A Podcast About Clinical Trials
CSL’s Ellyn Getz, Director of R&D Patient Partnerships, visits the Advarra podcast to talk about how clinical research studie…
Why Is Hemophilia B Called Christmas Disease?
The bleeding disorder hemophilia B goes by an alternate name all because of a 5-year-old boy.
Meaningful Gift Guide 2022
It’s time for holiday shopping! We recommend books, jewelry and other stocking stuffers to help spread the word about rare di…
Don't Get Sick This Holiday Season
5 ways to stay healthy as the winter holidays approach, bringing family togetherness, office parties and some familiar uncert…
Explainer: What Are T Cells?
A very smart part of the immune system, T cells remember infections that your body has experienced before, an immunologist sa…