What Patient Focus Means to Me
Understanding our patients and advancing their access to care is part of our promise.
Signs of a Bleeding Disorder
What women need to know about undiagnosed symptoms.
Tied Up in a Meeting
Kids take charge in National Hemophilia Foundation video.
Study Finds Rare Disease, Anxiety Link
Rare disease patients face isolation and need support, researcher finds.
7 Team Lessons From Dogsledding
Every day takeaways from CSL Behring’s team building adventure in the Rockies.
Leading Active, Fulfilling Lives
Anyone coping with a rare disease knows first-hand how difficult and frustrating it can be to find the correct diagnosis and proper treatment for their condition. Sometimes it takes years. Yet, when the search is over, many people can – and do – lead active, fulfilling lives. Discover the story of Roberta Smith, one of our many patients thriving in the face of von Willebrand Disease.
von Willebrand Disease Patient
Roberta refuses to let von Willebrand Disease get in the way of an active and fulfilling life.