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Personal Stories
CSL Behring is committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide. Anyone coping with a rare disease knows first hand how difficult and frustrating it can be to find the correct diagnosis and proper treatment for their condition. Sometimes it takes years. Yet, when the search is over, many people can – and do – lead active, fulfilling lives. The people profiled here have all traveled the long road to better health or have dedicated their lives to helping people who are managing a rare disease. Click on their names and learn their stories.
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von Willebrand disease (VWD) Type 1
Diane Rankin
Therapy: Humate-P® (Antihemophilic Factor/von Willebrand Factor Complex)
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Hereditary Angioedema
Sarah Smith
Position: President of Spanish Association for Hereditary Angioedema Due to C1 Inhibitor Deficit (AEDAF)
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Hemophilia A
Perry Parker
Therapy: Helixate® FS (Recombinant Coagulation Factor VIII)
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Alpha-1 Antitrypsin Deficiency (AATD)
Lorena Payne
Therapy: Zemaira® (Alpha-1 Proteinase Inhibitor)
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