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Personal Stories

CSL Behring is committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide. Anyone coping with a rare disease knows first hand how difficult and frustrating it can be to find the correct diagnosis and proper treatment for their condition. Sometimes it takes years. Yet, when the search is over, many people can – and do – lead active, fulfilling lives. The people profiled here have all traveled the long road to better health. Click on their names and learn their stories.

Corrine Gentile-Kraus Hereditary Angioedema (HAE)

Corinne Gentile-Kraus
Therapy: C1-esterase inhibitor
Years to Diagnose: 26

  Elaine Hill Primary Immune Deficiency

Elaine Hill
Therapy: Normal immunoglobulin
Years to Diagnose: 30

 
Myra Hanson von Willebrand Disease

Myra Hanson
Therapy: Coagulation factor VIII
Years to Diagnose: 35

  Myra Hanson von Willebrand disease

Linda Alongi
Therapy: Desmopressin acetate nasal spray
Years to Diagnose: 35