Christie Hardin, RN
Hereditary Angioedema (HAE)
Berinert® (C-1 Esterase Inhibitor)
At the age of 13, Christie Hardin awoke from a night’s sleep to find her lips and face swollen beyond recognition. For Christie, this experience led to the realization that she too had Hereditary Angioedema (HAE).
“I’m from a family with five generations of HAE patients,” Christie said. “My first attacks manifested around the time I began my menses. I was informally diagnosed (at age 13) due to my family history, but didn’t have an official diagnosis backed up by lab work until I was 16.”
HAE is a rare, potentially life-threatening disorder caused by a deficiency of C-1 esterase inhibitor (C1-INH). The condition is inherited and the
symptoms of HAE include unpredictable, substantial, and painful swelling in specific parts of the body, including the intestines, face, hands, feet, and/or larynx.
“I was often hesitant to do certain activities because it would cause an attack. I was also afraid to go places away from my physicians,” Christie said. “Now, with treatment, I have more confidence to go on trips.”
When Christie begins to feel the symptoms of an HAE attack, she self-administers
Berinert P® [C1-Esterase Inhibitor, (Human)] from
CSL Behring. Berinert treats acute facial, abdominal and laryngeal hereditary angioedema (HAE) symptoms by providing C1-INH deficient adult and adolescent patients with the missing protein.
Christie credits her decision to pursue a career in nursing to her experiences with HAE. She is also a patient-to-patient advocate as a member of CSL Behring’s B.E.N. P.A.L.S.™ (Peer Advocates for Learning and Support). B.E.N. P.A.L.S. is a part of the
Berinert Expert Network (B.E.N.TM), a patient resource program for those who want access to Berinert.
“There are approximately 34 members of my family who have hereditary angioedema,” Christie said. “Therefore, I’ve had the opportunity to have a lot of people around me who can let me know what to expect (with HAE) and who can give me support when I’m sick and no one else understands.”
“That’s why I joined a support program. I want to be there for those who don’t have people in their family who they can talk to about the condition,” Christie added.
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