Useful Links - Pulmonary

• Alpha-1 Advocacy Alliance
  The Alliance’s mission is to improve the health and well being of those affected by Alpha-1 through support to patients, educating healthcare professionals and advancing public policy for the Alpha-1 Community.
  
  
• Alpha-1 Antitrypsin Deficiency -- eMedicine
  This site provides medical information about Alpha-1 Antitrypsin Deficiency.
  
  
• Alpha-1 Association
  From local support to national conferences and the latest news on research and treatment, this site unites the Alpha-1 community to improve the quality of life of those affected by alpha-1-antitrypsin deficiency (Alpha-1).
  
  
• Alpha-1 Foundation
  The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.
  
  
• Alpha-1 Kids
  Alpha-1 Kids' mission is to provide information to parents of Alpha-1 infants, children, and adolescents about the problems and prognosis of the deficiency and to provide support, information, and data about its impact during childhood.
  
  
• AlphaNet
  AlphaNet is devoted to improving the lives of individuals with Alpha-1 antitrypsin deficiency through comprehensive disease management services, clinical research administration and consultative services. The organization also funds research and community activities.
  
  
• Alpha One International Registry
  The Alpha One International Registry (AIR) is a multinational research organization, representing combined research efforts of nearly 20 countries. The registry was formed in response to a recommendation by the World Health Organization at a meeting on alpha1-antitrypsin (AAT) deficiency in March 1996.
  
  
• American Lung Association
  The mission of the American Lung Association® is to prevent lung disease and promote lung health.
  
  
• Children’s Liver Association for Support Services
  C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Its goal is to be both a service to families and a valuable resource for the medical community.
  
  
• MUMS National Parent-to-Parent Network
  MUMS is a national parent-to-parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. Its main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
  
  
• Zemaira®
  Zemaira® is used for chronic A1-PI augmentation therapy in adult Alpha-1 patients with emphysema. Zemaira® has been shown to be safe and effective, with half or less the infusion volume and time of other Alpha-1 therapies.
  
  
• More Resources
  
• Raising Awareness of Alpha-1 On World COPD Day
  
• Raising Awareness of Alpha-1 On World COPD Day