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Key Issues Dialogue: HAE and PID

CSL Behring Dialogue Participants: Left to Right: Eddie Owens, Chris Hughan, Dr. Richard Herriot and Dr. Hillary Longhurst
Left to Right: Eddie Owens, Chris Hughan, Dr. Richard Herriot and Dr. Hillary Longhurst

About the Participants

Dr. Hilary Longhurst
Consultant Immunologist, Barts and The London NHS Trust, London, England

Member, Medical Advisory Panel, Primary Immunodeficiency Association

Dr. Hilary Longhurst trained in Cambridge and London. She began specialist training in general medicine but during her Ph.D. she developed an interest in immunology. She is currently Consultant Clinical Immunologist at Barts and the London NHS Trust. She is also responsible for immunology laboratory services for North East London and Essex.

She is an enthusiastic supporter of patient empowerment, aiming to enable patients to lead independent, productive lives. Her unit was one of the first in the U.K. to offer subcutaneous immunoglobulin therapy and home therapy for C1 inhibitor deficiency.

Dr. Richard Herriot
Chair, U.K. Primary Immune Network

Richard Herriot studied medicine at Aberdeen University and trained in General Medicine and Immunology in Aberdeen, Glasgow and Oxford. He has been Consultant Immunologist since 1992 with responsibility for providing specialist care services, in hospital and at home, for patients with primary immune deficiency and allergic disorders across Grampian and Highland regions in the North and East of Scotland.

He is keen to support the development of Immunology service provision to patients throughout the U.K., particularly in respect of infrastructure, quality, training and interaction with service commissioning structures. He is Chairman of the U.K. Primary Immunodeficiency Network, past Chairman of the Association of Clinical Pathologists Committee on Immunology, specialty adviser on Immunology to the Scottish Office Department of Health and a committee member of the Joint Royal College of Physicians Postgraduate Training Board Speciality Advisory Committee in Immunology and Allergy and the Royal College of Pathologists Specialty Advisory Committee on Immunology and Joint Committee on Immunology and Allergy.

Chris Hughan
Chief Executive, Primary Immunodeficiency Association (PiA), London, England

Chris Hughan has been involved in the charitable sector for nearly twenty years, initially as a Trustee and Chairman of a national charity supporting children with Inflammatory Bowel Disease (IBD) and their families, and more recently in CEO posts in IBD charities in the U.S. and U.K. He has been Chief Executive of PiA for the past two years.

In his earlier career in the commercial sector Chris held a number of senior posts in major advertising and communications companies, as well as establishing, developing and leading three public relations companies—including Ogilvy & Mather PR in the U.K. and his own consultancy—Communications in Business.

Eddie Owens
General Manager, U.K. and Ireland, CSL Behring

CSL Behring
CSL Behring is a global leader in the plasma protein biotherapeutics industry. Passionate about saving lives and improving the quality of patients’ lives, CSL Behring manufacturers and markets a range of plasma-derived and recombinant products for rare diseases.

The Primary Immunodeficiency Association
PiA is the only U.K. charity that supports people living with one or more of the over 80 recognised PID. The charity works closely with specialist immunology centres to help provide optimal treatment for all PID patients; provides a wide range of information and activities to support, inform and benefit children and adults with PID; advocates for the rights of its members with government; and funds important research, often leading to breakthrough treatments—such as gene therapy and bone marrow transplants.

The U.K. Primary Immune Network
The U.K Primary Immune Network was established to improve PID patients’ care through the development of common approaches to management by means of setting agreed standards of care. To further this aim, help is provided in the form of model protocols (policies, procedures and guidelines), based on common practice and available on the Web site for downloading by individual centres who wish to use them as the basis of local protocols.

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