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LEAD Grants

Local Empowerment for Advocacy Development (LEAD) Grants

CSL Behring Local Empowerment for Advocacy Development (LEAD) Grants are community-based grants of approximately $10,000. These grants are intended to help local patient organizations achieve their advocacy objectives. CSL Behring will award LEAD Grants to organizations that submit proposals demonstrating that financial assistance would help them address important local and state advocacy issues and initiatives.

Local patient organizations have already demonstrated significant leadership in tackling complex legislative and regulatory public policy issues. Advocacy can, however, be costly. CSL Behring LEAD Grants will help defray these costs. Moreover, CSL Behring will work with the grant recipients to advance their objectives in order to obtain success.

In order to qualify for a LEAD Grant, a local organization must be:

  • A recognized patient advocacy organization representing individuals who use plasma/recombinant therapies to treat bleeding disorders, immune disorders, Alpha-1 deficiency or other conditions,
  • A non-profit organization with 501(c)(3) tax status, and
  • An organization currently addressing a specific advocacy issue or intending to address such an issue.

Examples of Advocacy Issues for a LEAD Grant

  • Pursuit of standard/quality of care legislation or regulations for plasma-derived therapies and their recombinant alternatives.
  • Efforts to defeat or overturn restrictive formulary proposals by a state Medicaid or an insurer.
  • Pursuit of legislation or regulations that will increase access for individuals to obtain their plasma-derived or recombinant therapy.
  • The creation of a grassroots program/database to lobby the state legislature.
  • Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived and recombinant therapies.

Please submit the LEAD Grant application to be considered.

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